News
CEO Leigh Vallance to leave PWSA - new CEO announced
Wednesday 21st March 2012Volunteer recycles used stamps over the last 10 years to raise a magical £1,000
Help Kenny raise more ...
Christmas cards and goodies
Our 2011 range of Christmas cards and goodies is
now available.
All together at our latest family weekend
Our latest family weekend at the Gower Peninsula , South Wales, was a great success.
With 8 families getting together with PWSA UK staff members, Jackie Waters and Rob Kempson, everyone enjoyed the warmest weekend for October since records began!
Annual reports and financial accounts
View our latest annual report and financial accounts for 2010-11
NHS Choices Video
NHS Choices now have pages of information and a video devoted to PWS on their website. The video features Prof Tony Holland, and one of our parent members, Sharon and her daughter Daisy. It is also accompanied by text about the management and a list of current clinical trials. Please forward the link to anyone you think might be interested.
NEW! Distance learning course
National Open College Network - Understanding the needs of individuals with Prader-Willi Syndrome
Following a successful pilot course, we are very pleased to offer the above course to anyone working or living with a person with PWS.
It is a recognised unit within the National Open College Network and it is the ONLY specific course on PWS which is externally moderated and accredited.
You may be able to use it as evidence towards other qualifications.
The course covers the following aspects of PWS:
- Main characteristics
- Recognising physical and mental health problems
- Understanding the need for support for weight management
- Recognising behavioural characteristics
- Recognising different ways of achieving effective communication
- Awareness of relationship and sexual issues
- Special risk factors associated with PWS
- Ethical implications
The course is mainly via distance learning, with access to your own personal tutor, who will be a qualified PWSA staff member. However, there will be one day of face to face learning, normally in Derby.
The course fees are £250 for individuals - this includes attendance at the face to face day and all learning materials. It does not include your travel or postage costs. There is a discount for people in groups of 3 or more attending from the same organisation.
To register your interest and find out more, please contact Kendra Rhodehouse on 01332 365676 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it. .
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