Dates for your Diary - upcoming events of interest to friends of PWSA UK

To find out more about an event, please use the contact details in the articles below.



DATE FOR THE DIARY - 4th Annual Collingham Real Ale Festival,  June 6, 2014 at 7:00pm - Collingham, West Yorkshire


2014 BRITISH 10K LONDON RUN - 13th July

The 2014 British 10K London Run was once again a huge success and we are now looking for our 2014 team. A fabulous event which also sees many of the PWS families coming together afterwards for a drink, the atmosphere is always electric and is an experience not to be missed. If you would like to be a part of 'Team PWSA' in 2014 please give Maggie a call on 01332 365676 or by email This e-mail address is being protected from spambots. You need JavaScript enabled to view it.

2nd International Congress on Research of Rare and Orphan Diseases RE(ACT) 2014


The conference will be held at the Gehry building on the Novartis Campus in Basel, Switzerland, from 5th to 8th March 2014 – a superb setting for stimulating learning, exchanges and networking.
The conference sessions will explore issues and cutting-edge technologies that affect many adult and paediatric conditions. The following topics are to be discussed:
  • Stem cell and cell therapy approaches
  • Genetic mapping and genomic instability
  • Pathophysiology and diagnostics
  • Degenerative disorders
  • Regulatory affairs and patients in research
The aim is to promote research on rare and orphan diseases among the general public, industry and policymakers as well as to provide a forum for researchers to meet and pool their knowledge. The underlying objective is to tackle the key issues that need to be addressed if we are to see new and promising therapies and treatments rapidly delivered to patients all around the world.
For further details see