19 - 25 years

Adults with PWS can lead very worthwhile lives, although few find permanent full-time jobs because of problems with food, difficulties in adapting to change, emotional instability, and becoming easily tired. However, most will benefit from being able to take part in voluntary work of various kinds or part-time jobs.

Weight control continues to be a problem for most adults with PWS, and all the problems which accompany obesity will increase if weight is not managed. Life expectancy is increasing for people with PWS - the oldest living person known to the Association is 74 - but sadly there are still many who are dying in their 20s, 30s and 40s from obesity-related diseases. 

You can find out more about the above topics in our special handbook, Adults with PWS - A Handbook for Parents and Carers. The first copy is free to parents. As it is a 48 page, full colour, publication, it is not available online. This e-mail address is being protected from spambots. You need JavaScript enabled to view it.


Route map


Please click here for a route map which will give you information about services in health, education, benefits and care which you may like to access. 

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