Because of the rarity of PWS,it is uncommon for a school to have more than one pupil with the syndrome - although this is more likely in special schools. Managing the complex needs of the syndrome, whilst taking into account the needs of all the other pupils at the school, can therefore be difficult, particularly around access to food and supervision at lunch-times and break. In most cases, teacher support will be needed for varying lengths of time, depending on the needs of the pupil with PWS. Nearly every child known to the PWSA UK has a Statement of Need (Record of Need in Scotland).
In recent years there has been a number of cases where a child with PWS has been excluded from a school because of their challenging behaviour. It is important to understand that the behaviour is part of the syndrome and not normally deliberate on the part of the child.
If you are experiencing difficulties with the child with PWS in your school, please contact us and talk to our experienced staff about the various options for management.