Welcome to The Zone - specially for people with PWS. You'll find lots of tips and resources here, as well as links to other websites which may be of interest to you.
This is YOUR area, so please tell us what you would like to see here, and any suggestions you have for links to other sites. We'll be developing it and making it much bigger in the coming months.
Tell us about your life!
We are planning to have a Powerpoint presentation to show them with photos, drawings and words from people with PWS from all around the world.
Would you like to send us something to add to the presentation? We need one page of photos, drawings and/or words from each person. To find out more and to see an example, please click here.
Gala Performance of people with PWS at the International Conference in July
Our Way of Life is a new publication written by people with PWS and especially for people with PWS. It explains what it is like to live with PWS by people who know, and how people with PWS and others can manage so that their lives can be positive and fulfilling. It contains real life stories and photos of people with PWS - all of whom are different, but all of whom share many of the daily challenges of living with the syndrome.
It is an A5 booklet with 60 pages containing lots of colour photos and pictures.
£4.95 - First copy is FREE to people with PWS. To order a copy, please download an order form.
Big Issues is a colourful quarterly newsletter specially for people with PWS. It features photos and letters from people with PWS and a competition. Click here to see the latest copy.
17 year old Lewis
We'd love to publish online any paintings or drawings you have done. Why not
a scan or photo of your artwork to share with others?