The Zone

Welcome to The Zone - specially for people with PWS. You'll find lots of tips and resources here, as well as links to other websites which may be of interest to you. 

This is YOUR area, so please tell us what you would like to see here, and any suggestions you have for links to other sites. We'll be developing it and making it much bigger in the coming months.

 

Tell us about your life!

 

We are planning to have a Powerpoint  presentation to show them with photos, drawings and words from people with PWS from all around the world.

Would you like to send us something to add to the presentation? We need one page of photos, drawings and/or words from each person. To find out more and to see an example, please click here.


Gala Performance of people with PWS at the International Conference in July

The big news is there is an international PWS conference in Cambridge this July! We are planning a gala performance for the conference on Saturday 20 July and we are hoping you will join our special cast. As this will be such a special event we need to rehearse beginning in March. We will rehearse at a church hall in Battersea London one Sunday afternoon a month from 2-4pm. No prior experience required, just enthusiasm. It is going to be a great show if you help us. You need to be able to come to the rehearsals (on your own or with a parent or carer). Please email Kate Grussing to let us know if you might join us or if you have any questions: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.

 

Our Way of Life

Our Way of Life is a new publication written by people with PWS and especially for people with PWS. It explains what it is like to live with PWS by people who know, and how people with PWS and others can manage so that their lives can be positive and fulfilling. It contains real life stories and photos of people with PWS - all of whom are different, but all of whom share many of the daily challenges of living with the syndrome.

It is an A5 booklet with 60 pages containing lots of colour photos and pictures.

£4.95 - First copy is FREE to people with PWS. To order a copy, please download an order form.

 

Big Issues

Big Issues is a colourful quarterly newsletter specially for people with PWS. It features photos and letters from people with PWS and a competition. Click here to see the latest copy.

 

Pleased to meet you!

17 year old Lewis 

 

 

 

 

 

 

Love Puzzles?

Here are some websites with free puzzles. This e-mail address is being protected from spambots. You need JavaScript enabled to view it.   if you find any more we can add to the list.

The Puzzler

Jigzone

The Jigsaw Puzzles

Free Crosswords Online


Send us your artwork

We'd love to publish online any paintings or drawings you have done. Why not This e-mail address is being protected from spambots. You need JavaScript enabled to view it.   a scan or photo of your artwork to share with others?
 

Recipe of the month

If you have a tasty low calorie recipe you'd like to share, please This e-mail address is being protected from spambots. You need JavaScript enabled to view it. .  We'll be publishing a new recipe every month, and asking you to try them and let us know what you think. We'll keep all the best ones for others to try too

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