PWSA(UK) Sitemap

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  • Personal Independence Payments (PIP)
  • Call for participation in the European Research Project: BURQOL-RD
  • Conference on behaviour and mental health in PWS
  • e-petition: ring fence money for people with learning disabilities
  • Online questionnaire - emerging adults with disability
  • Our Way of Life - new publication
  • Carrying the Olympic flame for PWS!
  • Volunteer recycles used stamps over the last 10 years to raise a magical £1,000
  • PWSA Publications List
  • Annual reports and financial accounts
  • NHS Choices Video
  • NEW! Distance learning course
• What is PWS
  • Publications
  • Characteristics of PWS
  • Genetics of PWS
  • Diagnosis
  • Endocrine disorders in PWS
  • Health care in PWS
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  • Weight management in PWS
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  • Events
    • Family Picnic at Sandy Balls Holiday Centre - 19th May 2012
    • LONDON ZOO Special Children's Day and PWSA UK Family Day - Saturday 19th May 2012
    • Sandy Balls Family Weekend - 18th - 21st May 2012 FULLY BOOKED
    • Exotic Sports Car Show, South Green, Southwold, Suffolk - 20th May 2012
    • Open College Network course - Supporting Individuals with PWS - 21st May 2012
    • 6th European Conference on Rare Diseases & Orphan Products (ECRD 2012) 24th & 25th May
    • Collingham Real Ale Festival in support of PWSA UK- 1st to 3rd June
    • Picnic in the Park - Heaton Park, Manchester 17th June 2012
    • PWSA Behaviour Conference - 12th June 2012
    • British 10k Run - 8th July 2012
    • Residential Care Forum - 5th July
    • 2nd International Conference on Hyperphagia - 17-20 October 2012
    • 8th International Prader-Willi Syndrome Conference - July 2013
  • Get Involved
  • Research
    • Call for participation in the European Research Project: BURQOL-RD
    • Hyperphagia and Behavioural and Emotional Problems
    • Recent UK Research - findings from behavioural studies of people with PWS
    • Recent UK Research - The Under Fives Project
    • The health and well-being of people with a neurodevelopmental disorder
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    • News
      • Personal Independence Payments (PIP)
      • Call for participation in the European Research Project: BURQOL-RD
      • Conference on behaviour and mental health in PWS
      • e-petition: ring fence money for people with learning disabilities
      • Online questionnaire - emerging adults with disability
      • Our Way of Life - new publication
      • Carrying the Olympic flame for PWS!
      • Volunteer recycles used stamps over the last 10 years to raise a magical £1,000
      • PWSA Publications List
      • Annual reports and financial accounts
      • NHS Choices Video
      • NEW! Distance learning course
    • Feature
      • Truly Priceless Appeal
      • 2013 International Conference
      • Welcome to the new website!
      • Our Patron
  • What is PWS?
    • Vision and care of the eyes in PWS
    • Speech and language in PWS
    • Publications
    • Ethical and legal issues
    • Educating the child with PWS
    • Behaviour management in PWS
    • Endocrine disorders in PWS
    • Weight management in PWS
    • Health care in PWS
    • Genetics of PWS
    • Diagnosis
    • Characteristics of PWS
  • Quick Links
    • Families
      • 25 years and older
      • 19 - 25 years
      • 15 - 19 years
      • 10 - 15 years
      • 5 - 10 years
      • 0 - 5 years
    • The Zone
    • Professionals
      • Employers
      • Education
      • Residential care and supported living
      • Social and community services
      • Health Services
    • Events
      • Collingham Real Ale Festival in support of PWSA UK- 1st to 3rd June
      • Family Picnic at Sandy Balls Holiday Centre - 19th May 2012
      • 2nd International Conference on Hyperphagia - 17-20 October 2012
      • Residential Care Forum - 5th July
      • LONDON ZOO Special Children's Day and PWSA UK Family Day - Saturday 19th May 2012
      • Exotic Sports Car Show, South Green, Southwold, Suffolk - 20th May 2012
      • 6th European Conference on Rare Diseases & Orphan Products (ECRD 2012) 24th & 25th May
      • Picnic in the Park - Heaton Park, Manchester 17th June 2012
      • Open College Network course - Supporting Individuals with PWS - 21st May 2012
      • 8th International Prader-Willi Syndrome Conference - July 2013
      • British 10k Run - 8th July 2012
      • PWSA Behaviour Conference - 12th June 2012
      • Sandy Balls Family Weekend - 18th - 21st May 2012 FULLY BOOKED
    • Get Involved
    • Research
      • Call for participation in the European Research Project: BURQOL-RD
      • Hyperphagia and Behavioural and Emotional Problems
      • Recent UK Research - findings from behavioural studies of people with PWS
      • Recent UK Research - The Under Fives Project
      • The health and well-being of people with a neurodevelopmental disorder
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    • Trustees
    • Who we are
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    • Our values, principles and objectives
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