Adults with PWS

There are a number of changes that you may need to deal with once a person with PWS becomes an adult. They may be leaving school, transferring from child health services to adult health services and possibly wanting more independence. Many adults often leave home to live in residential care or supported living. Trained and committed care staff are essential for the wellbeing of people with PWS. 

The information below will help you through this particular part of your journey. You can also contact our adults lead, Ruth Consterdine, on 01332 365676 or by emailing rconsterdine@pwsa.co.uk.

For resources aimed at adults with PWS, please visit our I Have PWS page.

PWS Journey

The following links are sections from the PWS Journey - a guide for parents containing information to help them navigate their way through their child's journey from birth through adulthood. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PWSA UK.

Resources for adults with PWS


Please visit our I Have PWS page aimed at adults with PWS


Residential Care & Supported Living - information for parents

We recognise that when the time comes for a person with PWS to move out of the family home and into more independent living, this can be a daunting prospect for many families. There are a number of factors to consider when choosing the right option for your son or daughter, which is why we have prepared a series of downloadable guides setting out the available options and the considerations to be taken into account.

Please click on the links below to download each document:




Residential Care & Supported Living - information for providers

It is rare for a person with PWS to live completely independently - most adults will either stay with their family or move into residential care or supported living. If you are a provider, you may find the following information helpful. 

More information can be downloaded here:
If you are setting up a residential care home for those with PWS, then this means you will become a 'service provider' and must therefore register with the Care Quality Commission (CQC).

To find out how to register a residential care home, click here.


Get in touch

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