There are a number of government benefits which may be claimed, though a diagnosis of PWS does not automatically entitle a person to them. Each is assessed on a case by case basis.
The links below also give information about other useful agencies and services.
The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PWSA UK
Sources of financial help and government allowances Birth to 2 years 2-5 years 5-10 years 10-13 years 13-18 years 18-25 years 25-40 years 40+ years
Useful agencies and websites Birth to 2 years 2-5 years 5-10 years 10-13 years 13-18 years 18-25 years 25-40 years 40+ years
If you have a question about benefits which is not answered in the links provided, or would like to suggest a useful agency, please contact us.