Children with PWS have varying degrees of cognitive and intellectual ability. Most have mild to moderate learning disabilities, but there are some who have an IQ of over 70 (reaching 100 or more in a few cases) and some who have severe learning disabilities. The emotional and social immaturity which is a characteristic of PWS usually means that most children will struggle to function at the expected level for their IQ, particularly as they become older.

Depending on individual ability, they may attend all types of educational schooling, including in some instances, residential schools.

Information for nursery staff

Youtube video for nursery school staff

The 33 minute video covers:
•    Characteristics of the syndrome
•    Early Years development
•    Cognitive Abilities
•    Dietary needs and management
•    Health concerns
•    Working with young children with PWS
•    Guidance on what reasonable adjustments you might make to enable the child to access every area of the EYFS
•    Transition to Primary School

Information for primary school staff

Information for secondary school staff

Information for college staff

Behaviour Management

5 - 10 years

10 - 13 years

13 – 18 years

18 – 25 years

Jeans For Genes will help fund the development of training materials for teachers and staff within schools who are supporting a child with Prader-Willi syndrome.