It is very rare for a person with PWS to live completely independently. Most adults will either stay with their family or move into residential care or supported living. Whatever option is chosen, access to food and a restricted lower calorie diet must be in place to maintain a healthy lifestyle. Additionally, because of the challenging behaviour associated with PWS, a number of other support and management techniques are often needed.
Information for residential care and supported living staff Important considerations for supported living
Supported Living and PWS Notes from Residential Care and Support Living Forum meeting July 2016
Special Topic Day on Behaviour Management for Adults – July 2017
Prof Tony Holland – The Underlying Reasons for Behavioural Challenges in PWS
Laura Brame – Managing Anxiety and Aggression
Emily Marambakuyana – Managing Lifestyle Changes
PWSA UK Support Staff Team – Quick Tips on Behaviour Management