This large-scale online survey is our first since 2007 to discover the real picture of how our children and adults with PWS and their families are in their health, education and their daily lives. The information in this survey will remain anonymous unless you choose to give your details and it will provide the evidence we need to campaign for better services for our children and people with PWS. So please, take part if your child is in the birth to 5 years age group! Go to