There are a number of government benefits which may be claimed, though a diagnosis of PWS does not automatically entitle a person to them. Each is assessed on a case by case basis. 

The links below also give information about other useful agencies and services.

The following links are sections from the PWS Journey.  Families can obtain a hard copy of the whole PWS Journey,  which is updated as their child reaches the next age range, by becoming a member of PWSA UK

Sources of financial help and government allowances      Birth to 2 years     2-5 years     5-10 years      10-13 years      13-18 years      18-25 years       25-40 years    40+ years

Useful agencies and websites    Birth to 2 years     2-5 years     5-10 years      10-13 years      13-18 years      18-25 years       25-40 years    40+ years

Contact us

If you have a question about benefits  which is not answered in the links provided, or would like to suggest a useful agency, please contact us.