Children and adults with PWS vary considerably in their cognitive abilities, ranging from severe learning disabilities through to mild or no learning disabilities, although in the latter case their emotional development can impact on the way they use the knowledge they have.  Children may attend mainstream or special schools, depending on their ability and the amount of support they can access. Although there are only a few adults with PWS in full-time employment, many have a fulfilling life through part-time or voluntary work, or accessing educational courses. 

The following links are sections from the PWS Journey.  Families can obtain a hard copy of the whole PWS Journey,  which is updated as their child reaches the next age range, by becoming a member of PWSA UK

For advice and support about applying for an Education, Health and Care Need Assessment about EHC plans, or about appealing a Local Authority decision. Please contact the office on 01332 365676 or email admin@pwsa.co.uk

Developing your child’s potential – Birth to 2 years

Developing your child’s potential and preparing for school  2 – 5 years

Your child at school  5 – 10 years

Developing your child’s potential  5 – 10 years

Your child at school  10 – 13 years

Your teenager at school  13 – 18 years

Further education and options after school 13 – 18 years

Education, work and training  18 – 25 years

Developing skills, work and training  25 – 40 years

Work and training  40+ years

Free monthly telephone advice service - Special education

Education Lawyers at Langley Wellington LLP Solicitors are offering a free telephone advice surgery to families of children with Prader-Willi Syndrome.

Their telephone appointments last up to 30 minutes and they can provide information about the relevant law, how it applies to your child and appropriate next steps/options for you to consider relating to:-
•    Special Educational needs for children between 0-25 years 
•    The Education, Health and Care Needs Assessment process from start to finish 
•    Transfer from Statements of Special Educational Needs to Education, Health and Care Plans
•    Education, Health and Care Plans
•    Appeals to the Special Educational Needs and Disability Tribunal
•    Choosing a special school 

If you would like to take advantage of this service, please contact PWSA UK Support Team staff member Patsy Counsell on 07525 197187 or email her at pcounsell@pwsa.co.uk 

Patsy will then talk through the issue with you and, if appropriate, book an appointment for you with Langley Wellington. 

PWS Passport

The PWS Passport can be used to inform others working with or caring for your son or daughter about their needs - you can adapt it to fit your personal circumstances.

You can download it here

Information for teachers

You may find the following links useful to give to your son or daughter’s teacher for educational support staff.

Information for nursery school staff

Youtube video for nursery school staff

The 33 minute video covers:
•    Characteristics of the syndrome
•    Early Years development
•    Cognitive Abilities
•    Dietary needs and management
•    Health concerns
•    Working with young children with PWS
•    Guidance on what reasonable adjustments you might make to enable the child to access every area of the EYFS
•    Transition to Primary School

Information for primary school staff

Youtube video for primary school staff

Information for secondary school staff

Information for college staff

Information to include when applying for an EHCP Assessment

The following link is to Best Practice Guidelines for Employers. This can be used for any type of employment, whether paid or voluntary. 

Best practice guidelines for employers

Contact us

If you have a question about education, work or training which is not answered in the links provided, please contact us.