It is very rare for a person with PWS to live completely independently. Most adults will either stay with their family or move into residential care or supported living. Whatever option is chosen, access to food and a restricted lower calorie diet must be in place to maintain a healthy lifestyle. Additionally, because of the challenging behaviour associated with PWS, a number of other support and management techniques are often needed.

Information for residential care and supported living staff       Important considerations for supported living

Supported Living and PWS Notes from Residential Care and Support Living Forum meeting July 2016

Special Topic Day on Behaviour Management for Adults – July 2017

Prof Tony Holland – The Underlying Reasons for Behavioural Challenges in PWS

Laura Brame – Managing Anxiety and Aggression

Emily Marambakuyana – Managing Lifestyle Changes

PWSA UK Support Staff Team – Quick Tips on Behaviour Management