It is very rare for a person with PWS to live completely independently. Most adults will either stay with their family or move into residential care or supported living. Whatever option is chosen, access to food and a restricted lower calorie diet must be in place to maintain a healthy lifestyle. Additionally, because of the challenging behaviour associated with PWS, a number of other support and management techniques are often needed.

Information for residential care and supported living staff       Important considerations for supported living

Supported Living and PWS Notes from Residential Care and Support Living Forum meeting July 2016

MCA Special Topic Day Presentations

We are very pleased to bring you the presentations from Professor Tony Holland and James Codling respectively, given during our MCA Special Topic Day. Huge thanks go to both gentlemen, for being kind enough to allow us to share these.

Professor Tony Holland - The underlying causes for lack of mental capacity in adults with PWS

James Codling - MENTAL CAPACITY AND PWS The Mental Capacity Act in practice