Prader-Willi syndrome (PWS) is a rare, complex, lifelong genetic condition which is present from birth. People with the syndrome may appear to have few issues, particularly if their weight has been well-managed, but it is only ongoing management and continuous supervision which prevents a situation becoming critical. Unlimited access to food can result in rapid weight gain, with potentially fatal consequences. Most individuals have a mild to moderate learning disability, though some have severe learning disabilities and others have a measured IQ of over 70, occasionally as high as 100 or more. However even those with no measured learning disability struggle as adults to live independently because of the challenges presented by PWS. Social services input is often required.

Read More

MCA Special Topic Day Presentations

We are very pleased to bring you the presentations from Professor Tony Holland and James Codling respectively, given during our MCA Special Topic Day. Huge thanks go to both gentlemen, for being kind enough to allow us to share these.

Professor Tony Holland - The underlying causes for lack of mental capacity in adults with PWS

James Codling - MENTAL CAPACITY AND PWS The Mental Capacity Act in practice