# Prader-Willi Syndrome Association UK Find out more about Prader-Willi syndrome (PWS) and how PWSA UK can support families across the UK affected by this rare genetic condition. ## Pages - [Dietary Management](https://www.pwsa.co.uk/dietary-management): Learn effective dietary strategies for managing Prader-Willi Syndrome. Access resources & support from our charity today! - [Information for education settings ](https://www.pwsa.co.uk/information-for-education-settings): Access essential resources for educators on Prader-Willi syndrome. Enhance your teaching with our training materials & support. - [Information for family](https://www.pwsa.co.uk/i-have-a-family-member-with-pws): Access vital resources & support for families affected by Prader-Willi Syndrome. Join our community for guidance & tools today! - [Our Campaigns](https://www.pwsa.co.uk/Campaigns): Join our campaign to raise awareness for Prader-Willi Syndrome. Learn about hyperphagia, the need for specialist support, and more. - [Information for Social Workers and Care Managers](https://www.pwsa.co.uk/information-for-social-workers-and-care-managers): Access essential resources for residential care & supported living for individuals with Prader-Willi Syndrome. Get support today! - [Support for carers](https://www.pwsa.co.uk/supportforcarers): Find vital resources & support for unpaid carers of those with Prader-Willi Syndrome. Access assessments, practical help & emotional support. - [What is PWS?](https://www.pwsa.co.uk/what-is-pws): Learn about Prader-Willi syndrome, its characteristics & management. PWS information & resources for parents, families, GPs, social workers and teachers. - [Radio 4 Appeal](https://www.pwsa.co.uk/radio-4-appeal): Tune in to BBC Radio 4 on 19th January for the PWSA UK Appeal. Support vital services for those with Prader-Willi Syndrome. Donate today! - [Register with us](https://www.pwsa.co.uk/register-with-us): Join PWSA UK for free! Connect with a community supporting Prader-Willi syndrome. Share experiences & influence our mission. - [Wider family support](https://www.pwsa.co.uk/wider-family-support): Access resources for families affected by PWS. Download our free e-book on self-care for adult siblings today! - [Social Care](https://www.pwsa.co.uk/social-care): Access essential social care resources for Prader-Willi Syndrome. Contact our support team for guidance and assistance. - [25 - 40 Years](https://www.pwsa.co.uk/25---40-years): Learn about living options & care strategies for adults with Prader-Willi Syndrome aged 25-40. Access vital resources today! - [Website under maintenance](https://www.pwsa.co.uk/wum): Our charity website is under maintenance until 15th December 2023. For support, please contact us via phone or email. - [10 - 13 Years](https://www.pwsa.co.uk/10---13-years): Find resources for managing PWS in teens. Access support & guidance for families today! - [13 - 18 Years](https://www.pwsa.co.uk/13---18-years): Access vital resources for teens with Prader-Willi Syndrome. Get support on health, behaviour, and education today! - [Conferences](https://www.pwsa.co.uk/conferences): Join our conferences & workshops for families, carers, & professionals. Stay tuned for event details & contact our helpline for inquiries. - [2 - 5 Years](https://www.pwsa.co.uk/2---5-years): Access vital resources for parents of children aged 2-5 with Prader-Willi Syndrome. Get support on dietary management, growth hormone, and more. - [HOME](https://www.pwsa.co.uk/home-old): PWSA UK offers vital support & resources for families affected by Prader-Willi syndrome. Get involved or donate today! - [Your New Baby](https://www.pwsa.co.uk/your-new-baby): Get vital support for parents of newborns with Prader-Willi syndrome. Learn about emotional needs & developmental milestones today! - [Gift Aid form](https://www.pwsa.co.uk/gift-aid-form): Boost your donations by 25% with Gift Aid. Complete the form to support the Prader-Willi Syndrome Association UK today! - [Management of PWS Training booking form and payment](https://www.pwsa.co.uk/management-of-pws-training-booking-form-and-payment): Manage PWS Training bookings & payments easily. Get started with our user-friendly form today! - [Information for A&E](https://www.pwsa.co.uk/information-for-a-and-e): Find essential A&E resources for Prader-Willi syndrome patients, including anesthesia guidelines. Contact our helpline for support. - [5 - 10 Years](https://www.pwsa.co.uk/5---10-years): Access essential resources for families of children aged 5-10 with Prader-Willi Syndrome. Join us for support and guidance today! - [test campaigns](https://www.pwsa.co.uk/test-campaigns) - [Transition to adulthood](https://www.pwsa.co.uk/transition-to-adulthood): Find resources for adults with Prader-Willi Syndrome. Get support for independence, residential care, & family guidance. - [Support our vital work](https://www.pwsa.co.uk/support-us): Help the PWS community through donations, fundraising, or volunteering. Make a difference today! - [PWS News](https://www.pwsa.co.uk/pws-news): Get the latest on Hyperphagia treatment, PWS Awareness Month, and community events. Join us in raising awareness for PWS. - [Financial Help](https://www.pwsa.co.uk/financial-help): Find vital financial support options for families affected by Prader-Willi Syndrome. Access guidance on DLA, PIP, and available grants. - [18 - 25 Years](https://www.pwsa.co.uk/18---25-years): Find vital resources for young adults 18-25 with Prader-Willi Syndrome. Get support on healthcare, education & more. Contact PWSA UK. - [Birth - 2 Years](https://www.pwsa.co.uk/birth---2-years): Access essential resources for families of children with Prader-Willi syndrome (PWS) aged birth to 2 years. Join PWSA UK for support. - [Adults with PWS](https://www.pwsa.co.uk/adults-with-pws): Access essential resources for adults with Prader-Willi Syndrome. Get support on care options, health services & independence today! - [Results Page](https://www.pwsa.co.uk/results-page): View results related to our charity's initiatives & support for those affected by Prader-Willi Syndrome. Join us in making a difference! - [Support Services](https://www.pwsa.co.uk/supportservices): Access vital support services for Prader-Willi Syndrome. Contact us for help with advocacy, training, and community events. - [GDPR](https://www.pwsa.co.uk/gdpr): Understand how we protect your personal data under GDPR. Complete our consent form to stay informed about our support services. - [Benefits you can claim](https://www.pwsa.co.uk/benefits-you-can-claim): Learn about benefits like Child Benefit & DLA for those with disabilities. Contact our support team for help with applications. - [Growing Up animations](https://www.pwsa.co.uk/growing-up-animations): Educational animations help those with PWS understand growth changes. Access resources today! - [Cookies Policy](https://www.pwsa.co.uk/cookiespolicy): Understand our Cookies Policy to enhance your experience. Learn about cookie types, user control, & privacy concerns. - [40+ Years](https://www.pwsa.co.uk/40plus): Explore the evolving understanding of PWS longevity. Access resources for families & support by joining PWSA UK. - [I have PWS](https://www.pwsa.co.uk/i-have-pws-old): Join PWSA UK for support, community events & resources for adults with Prader-Willi Syndrome. Connect for healthy living & emotional support. - [New Diagnosis](https://www.pwsa.co.uk/newdiagnosis): Access vital resources & community support for parents of children diagnosed with Prader-Willi Syndrome. Join PWSA UK for guidance today! - [Education](https://www.pwsa.co.uk/education): Get guidance on educational needs for those with Prader-Willi Syndrome. Access support for EHCPs & mainstream schooling today. - [Professionals you should see](https://www.pwsa.co.uk/professionals-you-should-see): Learn about essential professionals & clinics for Prader-Willi Syndrome support. Connect with experts to help your child thrive. - [Events](https://www.pwsa.co.uk/events): Find Prader-Willi Syndrome events in the UK. Connect with others online or at family weekends and community days. Join PWS webinars, conferences and fundraisers. - [Home](https://www.pwsa.co.uk/): We provide vital support & resources for those affected by Prader-Willi Syndrome. - [Training](https://www.pwsa.co.uk/training-options): Explore training options for professionals supporting Prader-Willi Syndrome. Contact us to enhance your understanding and skills. - [Resources for Prader-Willi Syndrome](https://www.pwsa.co.uk/pwsresources): Free, useful resources for Prader-Willi Syndrome. Download online or order physical copies. Limited to UK shipping. - [Volunteering](https://www.pwsa.co.uk/volunteering): Support individuals with Prader-Willi syndrome through volunteering. Join us to make a difference today! - [Our policies](https://www.pwsa.co.uk/our-policies): Review our essential policies on safeguarding, privacy, and complaints. Ensure safety & transparency in our support for Prader-Willi Syndrome. - [Our Impact](https://www.pwsa.co.uk/reports): View PWSA UK's annual reports & Impact Report. Stay informed about our financial transparency & community impact. Download reports from 2012-2024. - [Meeting up with others ](https://www.pwsa.co.uk/meeting-up-with-others): Join our OWL Focus Group for adults with Prader-Willi Syndrome. Participate in fun events & monthly Zoom meetings for support. - [Information for Police Forces and Security Professionals](https://www.pwsa.co.uk/information-for-police-forces-and-security-professionals): Access essential resources for residential care & supported living for individuals with Prader-Willi Syndrome. Get support today! - [Mental Capacity Hub](https://www.pwsa.co.uk/mental-capacity-hub): Resources for carrying out a mental capacity assessment in Prader-Willi Syndrome. How PWS affects someone's ability to make decisions about food and money. - [Information for dietitians](https://www.pwsa.co.uk/information-for-dietitians): Access essential resources for residential care & supported living for individuals with Prader-Willi Syndrome. Get support today! - [Information for professionals](https://www.pwsa.co.uk/im-a-professional-caring-for-someone-with-pws): Access vital resources for professionals caring for those with PWS. Get support & training today! - [Latest news and campaigns](https://www.pwsa.co.uk/latest-news-1): Get the latest updates from PWSA UK, including community events, research projects, and our quarterly PWS News magazine. Subscribe for updates! - [Contact us](https://www.pwsa.co.uk/contact): Reach out for advice, support, or volunteering with the Prader-Willi Syndrome Association UK. We're here to help! - [Our Services ](https://www.pwsa.co.uk/our-services): PWSA provides free information and support services for people with Prader-Willi Syndrome and their families. We also provide online and in-person training. - [Useful Organisations](https://www.pwsa.co.uk/useful-organisations): Support for those affected by Prader-Willi Syndrome. Access resources & advocacy services. Contact us for help today! - [Health](https://www.pwsa.co.uk/health): Access vital health info for Prader-Willi Syndrome. Learn about NHS clinics, therapies & resources. Contact our helpline for support. - [About the Team](https://www.pwsa.co.uk/about-the-team): Learn about the dedicated PWSA UK team supporting families affected by Prader-Willi Syndrome. Contact us for resources & training. - [Legacy giving](https://www.pwsa.co.uk/legacy-giving): Support families affected by Prader-Willi Syndrome with a legacy gift. Learn how your will can make a lasting impact today. - [Mental Health and Wellbeing](https://www.pwsa.co.uk/mental-health-and-wellbeing): Support for mental health in PWS. Access resources on coping strategies & resilience. Get help today! - [Make a donation](https://www.pwsa.co.uk/donations): Support the PWS community with your donation. Choose an amount, enhance it with Gift Aid, and set up regular contributions. - [Management of PWS: best practice guidance](https://www.pwsa.co.uk/PWSBestPracticeGuidelines): Access best practice guidance for managing PWS, including dietary tips & health monitoring. Get support today! - [Vision and Mission](https://www.pwsa.co.uk/vision-and-mission): Learn about our vision & mission to support those affected by Prader-Willi syndrome. Join us in promoting awareness & access to care. - [Partnerships](https://www.pwsa.co.uk/partnerships): Learn how PWSA UK partners with charities to support those with Prader-Willi syndrome. Join us in advocating for better care! - [Research](https://www.pwsa.co.uk/research): Stay updated on vital research for Prader-Willi Syndrome. Join us in supporting studies and improving lives. - [Information for medical professionals](https://www.pwsa.co.uk/information-for-medical-professionals): Access essential resources for GPs & hospital staff on Prader-Willi Syndrome management. Get guidelines & support today! - [Wise Owl Feathers](https://www.pwsa.co.uk/wise-owl-feathers): Read the Autumn edition of Wise Owl Feathers. Join for free & engage with activities like the Spot the Difference competition! - [Residential care and supported living providers](https://www.pwsa.co.uk/residential-care-and-supported-living-providers): Access essential resources for residential care & supported living for individuals with Prader-Willi Syndrome. Get support today! - [Vacancies](https://www.pwsa.co.uk/vacancies): Explore job openings at PWSA UK! Join us as a Training Manager, Volunteer Treasurer, or Outreach Volunteer to support those with Prader-Willi Syndrome. - [I have PWS](https://www.pwsa.co.uk/i-have-pws): Access vital resources & support for Prader-Willi Syndrome. Join for free & receive our magazine, Wise Owl Feathers, with helpful articles. - [Family Life](https://www.pwsa.co.uk/family-life): Access vital resources for families managing Prader-Willi Syndrome. Get support on meal-planning, behaviour management & legal advice. - [About us](https://www.pwsa.co.uk/about): PWSA UK offers lifelong support for those affected by Prader-Willi syndrome. Join us in making a difference today! - [Behaviour Management](https://www.pwsa.co.uk/behaviour-management): Learn effective strategies for managing challenging behaviours in Prader-Willi Syndrome. Access resources & support today! - [Privacy Policy](https://www.pwsa.co.uk/privacy-policy): Learn how PWSA UK protects your personal data. Read our Privacy Policy for details on data collection & cookie usage. - [Trustees](https://www.pwsa.co.uk/trustees): Learn about the role of trustees in supporting those affected by Prader-Willi syndrome. Get involved with PWSA UK today! ## Blog Posts - [The Big PWS Survey](https://www.pwsa.co.uk/the-big-pws-survey) - [Learning from Bereavement: Improving Care for People with Prader–Willi Syndrome](https://www.pwsa.co.uk/learning-from-bereavement-improving-care-for-people-with-praderwilli-syndrome) - [‘Purposeful Delay’: Our response to the ITV SEND whistleblower report](https://www.pwsa.co.uk/purposeful-delay-our-response-to-the-itv-send-whistleblower-report) - [Thank You to Our Fundraisers – Spring 2026](https://www.pwsa.co.uk/thank-you-to-our-fundraisers-spring-2026) - [Prader-Willi syndrome and hot weather: Understanding the risks and how to stay safe](https://www.pwsa.co.uk/prader-willi-syndrome-and-hot-weather-risks-and-how-to-stay-safe) - [New specialist PWS provision and the PWSA care charter](https://www.pwsa.co.uk/pws-residential-care-and-supported-living-influencing-standards-and-expanding-access) - [What does the supreme court decision on Deprivation of Liberty Safeguards (DoLS) mean for people with Prader-Willi syndrome?](https://www.pwsa.co.uk/what-does-the-recent-supreme-court-decision-on-deprivation-of-liberty-safeguards-dols-mean-for-people-with-prader-willi-syndrome) - [Thank you to our fundraisers](https://www.pwsa.co.uk/thank-you-to-our-fundraisers) - [It's PWS Awareness Month!](https://www.pwsa.co.uk/my-posted5b7a07) - [New connections and sharing joy at our PWS Adult Conference](https://www.pwsa.co.uk/pictures-from-our-pws-adult-conference) - [New course for social skills in PWS ](https://www.pwsa.co.uk/first-graduates-from-new-pws-social-skills-course) - [A new PWS Specialist Adviser for Scotland](https://www.pwsa.co.uk/meet-sandra) - [Every child achieving and thriving?](https://www.pwsa.co.uk/send reforms and pws) - [Aardvark HERO Trial Pause: Community Conversation](https://www.pwsa.co.uk/aardvark-hero-trial-pause-community-conversation)