Your child is individual, unique and special. They will smile. They will laugh. They will learn. They have a future, just on a different path. Your child can achieve, they can succeed and be happy.
So take each day as it comes … one step at a time, and never forget … you have a rare and beautiful child and we are only a phone call away.
Prader-Willi syndrome (PWS) was first described in 1956 by Swiss doctors, Prof. A Prader, Dr A Labhart and Dr H Willi, who recognised the condition as having unique and clearly definable features.
These features are, as medically described:-
• Hypotonia: weak muscle tone, and floppiness at birth.
• Hypogonadism: immature development of sexual organs and other sexual characteristics.
• Obesity: caused by excessive appetite and overeating (hyperphagia), and a decreased calorific requirement owing to low energy expenditure levels. (Obesity is not normally a feature of those whose food intake is strictly controlled.)
• Central nervous system and endocrine gland dysfunction: causing varying degrees of learning disability, short stature, hyperphagia, somnolence (excessive sleepiness), and poor emotional and social development.
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