When a child with Prader-Willi syndrome (PWS) is born, it can be a very difficult time for families as they come to terms with the diagnosis and all its implications. Babies and young children are usually seen by a variety of professional specialists including paediatricians, endocrinologists, speech therapists and dietitians. The following links will help all concerned to understand more about PWS and its management and how to help the child reach his or her full potential.


PWS Journey

The following links are sections from the PWS Journey.  Families can obtain a hard copy of the whole PWS Journey,  which is updated as their child reaches the next age range, by becoming a member of PWSA UK

General information about PWS, including genetics and characteristics

Information for families

Information for professionals