With adulthood comes further challenges, particularly around increasing independence and the lack of understanding about the very special needs of those with PWS on the part of some who work with them. Usually, instead of being under the care of a particular health professional such as a paediatrician as they were when children, adults will be seen by different specialisms for their health care. The following links will help all concerned to understand more about PWS and its management for adults.


PWS Journey

The following links are sections from the PWS Journey.  Families can obtain a hard copy of the whole PWS Journey,  which is updated as their child reaches the next age range, by becoming a member of PWSA UK

General information about PWS, including genetics and characteristics

Information for families

Information for professionals