As the person with PWS grows older, their parents may no longer be able to care for them. This is often when supported living or residential care is considered. Whatever form of living away from home is decided upon, it must always be tailored to the needs of the person with PWS, with trained and knowledgeable care staff. This is also a time when increasing weight, where it has not been well-controlled, can become a serious health issue. The following links will help all concerned to understand more about PWS and its management for adults.


PWS Journey

The following links are sections from the PWS Journey.  Families can obtain a hard copy of the whole PWS Journey,  which is updated as their child reaches the next age range, by becoming a member of PWSA UK

General information about PWS, including genetics and characteristics

Information for families

Information for professionals