Read all the latest news and developments from the world of PWS in our newsletter:
Researcher, Gina Skourti has been talking to families who have lost someone with Prader-Willi syndrome to see what lessons can be learned from their experiences. Gina and our trustee, Dr Anne Livesey, recently presented their findings at the Learning Together Conference.
You may have seen the recent ITV report where a whistle-blower working in a Local Authority as a SEN caseworker revealed how senior managers were deliberately delaying access for families for Special Educational Needs and Disabilities (SEND) services.
Our last fundraising blog finished at the end of April and featured Sarah and her amazing friends and family, who took part in the Kiltwalk for her son Ryan. If you missed it, you can read all about Sarah and our other incredible fundraisers from the start of the year here.
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- Developments in PWS research
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- News from the PWS community and about PWSA UK
We provide dedicated news and updates for families with younger children, parents of adults with PWS, professionals and a special magazine for adults with PWS, 'Wise Owl Feathers.'
