Details of three PWS community days announced in Ayr, Skegness and Dorset!
T ARGET NOW REACHED - THANK YOU! You can still support our work by making a donation here .
Can you help with this important piece of PWS research?
The taster sessions will be FREE and we encourage parents, grandparents and children to join in!
PWSA UK and FPWR UK are kicking off a new collaboration by going orange together!
Our one-day conference for adults with PWS returns for 2023!
Three new videos for Awareness Month from Pilates instructor Joakim Valsinger!
Help us raise funds and awareness of Prader-Willi syndrome
Easter can be a particularly challenging time for families in our PWS community. However, there are ways to celebrate without the need to focus on chocolate.
A huge welcome to Jackie Lodge, PWSA UK's new CEO, who joins us today. Here's Jackie to introduce herself: I am truly honoured to be joining PWSA UK as your new CEO and it was a real pleasure to meet so many members and families at the recent conference. I am looking forward to working with you to help ensure that every member of the PWS community has access to high quality care, opportunity and support. I take over from Susan, who has led the charity so ably for more than 10 years. Susan has done so much for the PWS community across the UK, and she will be a hard act to follow. I have almost 30 years' experience working in the charity sector in a range of management roles. I was most recently the Chief Executive of an endowed charity in Surrey which provides supported housing, community buildings, and grants for organisations tackling need and poverty. I have led the charity for almost 15 years, developing new services as well as ensuring the long-term financial stability of the organisation. I am also Vice Chair of the People's Health Trust and a board member of Co-Op Homes. I previously worked for the British Heart Foundation, heading up the UK care and rehabilitation programs. During this time, I developed the BHF heart nurse programme to provide specialist care across the UK for people with heart failure. Prior to this, I held a range of management roles with the Age Concern federation supporting the governance of local organisations and the development of quality assurance for information and advice services. I have also held various trustee positions on local and international charities. I have a BA in Psychology and a master's degree in Charity Management from City University. I am married with two grown up children and live in Surrey with my border terrier. In my spare time, you’ll find me rowing on the River Thames or running alon g the tow path.
