Events

Welcome to our events page. Events taking place soonest are at the top and, where possible, there are links or contact details for each event. We'll be adding to this page on an ongoing basis, so please keep checking back for further updates! 

Planning an event? Let Karen know by emailing kwilkinson@pwsa.co.uk or calling 01332 365676.

April 2024

11 - mUPD research webinar on Zoom at 7.30pm. Find out more and book your free place here.

18 - Parent to parent support group for parents of children aged 8-16, on Zoom at 8.30pm. Please email Sarah for further details.

20 - OWL Focus Group conference for adults with PWS. Find out more and book free tickets here.

21 - London Marathon – spaces are filled for 2024 but please email Karen to register your interest for 2025.


May 2024

4 - Tottenham Skywalk. Please email Lizzie for further information.

10-14 - PWS Community Weekend at Sundrum Castle, Scotland. Let us know you're coming here (please note you'll need to book and pay for your accommodation separately through the resort - you can find a link on the Eventbrite page).

11 - PWS Community Day at Ayr Beach, Scotland. Please contact Sarah for further information.

17-20 - PWS Community Weekend at Southview Holiday Park, Skegness. Let us know you're coming here (please note you'll need to book and pay for your accommodation separately through the resort - you can find a link on the Eventbrite page).

18 - PWS Community Day at Natureland Seal Sanctuary, Skegness. Please contact Sarah for further information.


June 2024

13 - Parent to parent support group for parents of children aged 8-16, on Zoom at 8.30pm. Please email Sarah for further details.

15/16 – Snowdon sunrise walk. Contact Lizzie for more information. 

20 - Parent to parent support group for parents of children aged 3-8, on Zoom at 8pm. Please email Sheila for further details.

22 - Parents' conference (for parents of over-16s). Details to come.

23 – Skydive. To sign up, please email Karen.


July 2024

7 - Parallel Windsor. Please email Karen for more information.

14 - PWS Summer Community Day at Hastings, 11am-2pm. Find out more and book your free places here.

21 - PWS Summer Community Day at Nene Park, 11am-2pm. Find out more and book your free places here.

28 - PWS Summer Community Day at Waterways Farm, 11am-3pm. Find out more and book your free places here.


August 2024

Details of events will be added here once confirmed.


September 2024

7-15 - Ride Across Britain. Cycle from Land's End to John O'Groats. Find out more and sign up here.

8 – Great North Run. Please email Karen for more information.

20-23 - PWS Community Weekend at Sandford Holiday Park, Dorset. Let us know you're coming here (please note you'll need to book and pay for your accommodation separately through the resort - you can find a link on the Eventbrite page).

21 - PWS Community Day at Studland Beach, Dorset. Please contact Sarah for further information.


October 2024

12 - Face to face conference in Southampton for parents of under-16s. Please contact Sheila for further information.

14 - Parent to parent support group for parents of children aged 3-8, on Zoom at 8pm. Please email Sheila for further details.

17 - Parent to parent support group for parents of children aged 8-16, on Zoom at 8.30pm. Please email Sarah for further details.


November 2024

Details of events will be added here once confirmed.


December 2024

Details of events will be added here once confirmed.


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