February
4th - The Importance of Food Security in PWS Care Webinar for Care Professionals.
Join Professor Brian Hughes (University of Galway) for an insightful webinar exploring body weight, behaviours of concern and social contact in adults with Prader-Willi Syndrome living in full-time care. The session will include a live Q&A with an expert panel, featuring Professor Tony Holland, offering practical guidance and evidence-based insights for care providers.
April
18th - Face to Face Conference for Adults with PWS. The PWSA Owl Focus Group (OFG) would like to invite adults with Prader-Willi syndrome to a Face-to-Face Conference, with a parent or carer attending alongside them.
The programme will include:
- An engaging session on staying safe online
- A guided activity led by the OFG, giving attendees the opportunity to share their thoughts on health, dietary management and other important topics
- A fun afternoon workshop, with a quiet space available if preferred
- Time to meet, talk and socialise
See you there!
May
15th - Awareness Day
30th - Up at the O2. Join this hair-raising fundraising challenge in the heart of London. This will be the third time we take on the iconic O2 Arena, climbing 52 metres high and spanning 365 metres across.
The event is suitable for anyone aged 8 and over who is at least 1.2 metres tall. We have previously welcomed residential homes to take part, and this continues to be a fantastic opportunity for groups and individuals alike.
With only 18 spaces available, please let us know as soon as possible if you would like to fundraise at the O2.
2026 Community Weekends
We’ll be updating the website with more details soon, but in the meantime, we wanted to give you plenty of notice about the dates and locations for our 2026 Community Weekends.
15 - 18 May: Skegness Weekend
12 - 15 June: Sundrum Weekend
18 - 21 September: Sandy Balls Weekend
Please fill in the form below if you would like to attend an event
Event sign up / info request
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We'll get back to you to confirm your place and send you all the details you need to attend.
Fundraising Events
Take a look at the fundraising events we have planned for 2026.
These events are organised by PWSA UK to raise vital funds to support our work and bring our community together. Whether you’re interested in joining a challenge, taking part in a fun run, or attending a local gathering, there’s something for everyone. By taking part, you’ll be helping to make a real difference.
London Marathon - 26th April
Spaces in the 2026 London Marathon are now filled. If you’re interested in taking part in 2027, please get in touch with us.
Great North Run - 13th September
We have 5 spaces in the iconic Great North Run. You can apply to run in the Great North Run here.
Planning your own fundraising event?
Contact our fundraising manager Karen (kwilkinson@pwsa.co.uk/ 01332 365676) to discuss how we can support you.
If the event you’re looking for isn’t listed here it may not be confirmed yet.
Join us as a member (it's free!) to receive updates about events as soon as they become available.
