Events
Welcome to our events page, which is regularly updated as new events are confirmed throughout the year.
Take a look at the events already scheduled for the year and get more information by registering your interest below.
Planning a fundraising event? Let Karen know by emailing kwilkinson@pwsa.co.uk or calling 01332 365676.
Register Your Interest
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If the event you’re looking for isn’t listed, it’s likely not yet confirmed. Why not join us as a free member to receive email updates about our events?
May
Awareness Month
Head to PWS Stronger Together to learn more about Move it May
16-19 - PWS Community Weekend at Ty Mawr Resort North Wales. Please note that you will need to book and pay for your accommodation separately through the resort. The link can be found on the Eventbrite page, which will be sent to you once you register your interest.
22 - P2P mUPD. Led by a parent volunteer, these sessions provide a supportive space for parents to share experiences. Each session is topic-based, with the first set by volunteers and future ones chosen by the group.
30- Awareness Day. The last friday in May is PWS Awarenss Day, spread awareness using #GoOrangeForPWS
June
4 - P2P Group for Dads. Our online support group for dads offers a safe, friendly, and informal space to share experiences, ask questions, and support one another.
12 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
21 - Community day at Dartmoor Zoo.
July
3rd July - Parent to Parent Group 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
6th July - Fundraising Event: Parallel Windsor. This all-inclusive fundraising event is one not to miss. Walk, run, or wheel your way to the finish line in the stunning Windsor Great Park.
17th July (8pm) - Parent to Parent Group 40+ yrs. This is a new parent-to-parent group specifically for families with adults aged 40 and over who have Prader-Willi Syndrome. These relaxed, informal sessions are led by our dedicated volunteer who understands the journey firsthand.
The aim is to create a supportive space where parents can come together to chat, share experiences, and explore topics that matter most to them. Each session will have a focus topic, guided by the volunteers, with future topics shaped by the group’s interests and needs.
Sessions will run via Zoom at 8 PM and last for around an hour. There’s absolutely no pressure to stay for the full time—you’re welcome to join for the whole hour, drop in and out, or just pop in for a few minutes.
Once you’ve registered, we’ll send you the Zoom link and all the details you’ll need.
August
21 - P2P Group 5-15yrs. Join our online support group for parents of children aged 5-15. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
September
7 - Fundraising Event: The Great North Run. Take part in the UK’s most iconic half marathon! We have just four spaces reserved for this event.
7 - Community Day Yorkshire and Humber.
11 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
11 - Vulnerable Beneficiary webinar.
19-22 - PWS Community Weekend at Camber Sands East Sussex. Please note that you will need to book and pay for your accommodation separately through the resort. The link can be found on the Eventbrite page, which will be sent to you once you register your interest.
27 - Fundraising Event: Abseil Down the National Express Lift Tower. Registration for this thrilling event will close soon, so don’t miss your chance to take part.
October
2 - P2P 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
November
27 - P2P Group 5-15yrs. Join our online support group for parents of children aged 5-15. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
December
4 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
2026 Community Weekends
We’ll be updating the website with more details soon, but in the meantime, we wanted to give you plenty of notice about the dates and locations for our 2026 Community Weekends.
15 - 18 May: Skegness Weekend
12 - 15 June: Sundrum Weekend
18 - 21 September: Sandy Balls Weekend
