August
2nd - PWS Community Day, Northern Ireland
Join us for a fun-filled family day at the Stormont Hotel, Belfast.
Get creative with a fun Arts & Crafts session, connect with other families and and enjoy free time in beautiful Stormont Park.
4th - PWS Community Fun Day at MOD Lyneham
Join us for a day of fun and PWS friendly activities including a special all-ability obstacle course!
September
7 - Fundraising Event: The Great North Run. Take part in the UK’s most iconic half marathon! We have just four spaces reserved for this event.
7 - Yorkshire and Humber Community Day.
Join us for a day of PWS-friendly activities and spending time with other families and people with PWS.
11 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
11 - Planning for the future Webinar: Vulnerable Beneficiaries
This friendly, informative online session will cover setting up wills, discretionary trusts, (which help protect your child’s financial future without affecting care arrangements), Lasting Power of Attorney and Deputyships.
19-22 - PWS Community Weekend at Camber Sands East Sussex. Please note that you will need to book and pay for your accommodation separately through the resort.
20- PWS Community Day - Rye Nature Reserve, Camber Sands
Join us for a day of PWS friendly activities and meet up with other families and people with PWS!
This community day is part of our Camber Sands community weekend, for anyone who'd prefer to just come along for the day.
23 - Northern Ireland Connect: Virtual.
Join our next NI Connect – taking place online via Zoom.
27 - Fundraising Event: Abseil Down the National Express Lift Tower. Registration for this thrilling event will close soon, so don’t miss your chance to take part.
October
2 - P2P 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
14 - Wills and Trust Webinar Scotland. This friendly, informative online session will cover the essentials of making a Will and setting up trusts, with clear, practical advice on how to secure your child’s future under Scottish law.
November
30th - North West Christmas Get Together
Join us in Wigan for the North West Christmas Get Together.
December
4th - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
14th - Cambridge Christmas Get Together. Join us in Cambridge for a Christmas Get Together.
2026 Community Weekends
We’ll be updating the website with more details soon, but in the meantime, we wanted to give you plenty of notice about the dates and locations for our 2026 Community Weekends.
15 - 18 May: Skegness Weekend
12 - 15 June: Sundrum Weekend
18 - 21 September: Sandy Balls Weekend
Please fill in the form below if you would like to attend an event
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We'll get back to you to confirm your place and send you all the details you need to attend.
Planning your own fundraising event for PWSA?
Contact our fundraising manager Karen (kwilkinson@pwsa.co.uk/ 01332 365676) to discuss how we can support you.
If the event you’re looking for isn’t listed here it may not be confirmed yet.
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