November

6th - Family Fund workshop: Transitioning to adult-age services and benefits.

Join the team at Family Fund to explore how you can plan for the changes to your child’s finances by using online services.


The move from teenager to adult requires careful planning. Parents and carers may be wondering how their young person’s benefits may be affected.


Family Fund will look at the various organisations that should be involved in supporting your young person as they transition into adult services. They'll also talk about where you can go for help, and who’s available to provide support.


If you have a question about the workshop, please contact: servicesmailbox@familyfund.org.uk.


17th - Parent 2 Parent Ages 5 -15yrs. The Parent 2 Parent groups are back, and our first session will focus on EHCPs for children aged 5 to 15. Join other parents for an informal discussion about EHCP experiences, what makes a good plan, and practical tips to help support your child. Together, we'll also choose a topic for our next session in early 2027. Our goal is to create a welcoming, supportive space where parents can connect, share and learn from one another.


28th  - Belfast PWS Christmas Get Together. Join us at Stormont Hotel, Belfast for our PWS Christmas Get Together.  

December

9th - Movement matters: Supporting physical activity for people with PWS.

Exclusively for care professionals supporting people with PWS.

Join this free webinar exploring the importance of exercise and movement for people living with Prader-Willi syndrome (PWS). Australian presenter Georgina Loughnan will share practical insights and approaches to supporting physical activity in everyday care.


13th -  Community Christmas Get together, North West. Join us for the North West Christmas Get Together in Wigan, with fun, games and a visit from Santa! We are looking forward to seeing you and making some truly magical memories. 


13th - Christmas Community Get Together, Gloucestershire. Get ready to celebrate with friends old and new at the PWSA Christmas Party. There's a mini disco with fun games, balloon modeling and maybe some magic! We'll have crafts and activities as well.


13th - Community Christmas Panto Trip, South West. We’re delighted to invite families from our PWS community to a very special festive treat this December at the Exeter Corn Exchange – a joyful performance of the classic pantomime Pinocchio! Tickets are completely free for families (up to 4 people) in our PWS community.


13th - Community Christmas Get Together, Scotland. Alongside the PWSA UK New Year pantomime, Elaine Auld is kindly organising a Christmas party for families to enjoy together. She has personally secured a community hall with parking, heating, and accessible changing facilities and toilets. 

For more information and to register your interest please contact Elaine. 


January

3rd - PWS Community Christmas Panto Trip, Scotland.

A magic carpet ride! 

Enter a whole new world of panto with a brand new version of Aladdin. Join us in Glasgow to find the magic lamp.

Tickets are completely free for families (up to 4 people) in our PWS community.

April

16th -19th - PWS Community Weekend Trecco Bay, South Wales. We will be heading to South Wales for a fun filled community weekend. You can join in with everything or just pick the bits you fancy - it’s your weekend, your way!

May

14th -17th - PWS Community Weekend Tattershall Lakes, Lincolnshire. Join us for a fabulous PWS get together. There will be lots of opportunities to meet and chat, to play and explore this lovely setting.


There are lots of facilities on park including indoor and outdoor swimming pools, bike hire, an Aqua Park, Archery and Jet Skis. There are playgrounds bars and entertainment with virtual darts, and craft activities.


15th - The Missing Piece Ball, Manchester.

Ruth, mum to Chester, who has PWS, is organising a black-tie ball to raise funds and awareness for Prader-Willi syndrome.


"On Saturday 15 May 2027, we'll be coming together for an unforgettable evening to raise funds and awareness for Prader-Willi syndrome, all inspired by our Chester.

And we couldn't have chosen this date by accident.

Chromosome 15.

15 May.

PWS Awareness Month.

One date with a very special meaning.

For now, all we're asking you to do is...

SAVE THE DATE

Saturday 15 May 2027

Full event details and ticket information coming soon."


Register your interest and be the first to hear when tickets are released.

June

11th - 14th - PWS Community weekend Sundrum, Scotland . Join us back in Sundrum. 

We’ve got a jam-packed programme full of joy, including crafty fun, coffee & chat time, a fabulous day out on Saturday and a relaxed get-together on Sunday! Join us for a little or as much as you want. 

July

2nd - 5th - PWS Community weekend St Margarets Bay, Kent. Get ready for a weekend of fun, friendship, and feel-good vibes!


Come join us in a warm and welcoming space where you’ll meet other amazing families, parents, carers, children, siblings, and adults too! 

Septemer

17th - 20th - PWS Community weekend White Cross Bay, Windermere. We're heading to White Cross Day for a fun filled community weekend. We can't wait to see you there! 

Please fill in the form below if you would like to attend an event


Event sign up / info request


We'll get back to you to confirm your place and send you all the details you need to attend.

Online meetings for adults with PWS

Ruth, pictured in the circle, hosts regular online Zoom sessions specifically for adults with PWS.

Featuring a variety of activities, including crafts, bingo and quizzes, with opportunities to win prizes, there is something for everyone to enjoy.

If this sounds like something you would like to be part of, email Ruth to receive an invitation to the next session.

Fundraising Events

Take a look at the fundraising events we have planned.

These events are organised by PWSA UK to raise vital funds to support our work and bring our community together. Whether you’re interested in joining a challenge, taking part in a fun run, or attending a local gathering, there’s something for everyone. By taking part, you’ll be helping to make a real difference.

Great North Run - 13th September

Spaces in the 2026 Great North Run are now filled. If you’re interested in taking part in 2027, please get in touch with us.

London  Marathon

Spaces in the 2027 London Marathon are now filled. If you’re interested in taking part in 2028, please get in touch with us.

Planning your own fundraising event?

Let us know! admin@pwsa.co.uk 

If the event you’re looking for isn’t listed here it may not be confirmed yet. 
Join us as a member (it's free!) to receive updates about events as soon as they become available.