July
3rd July - Parent to Parent Group 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
6th July - Fundraising Event: Parallel Windsor. This all-inclusive fundraising event is one not to miss. Walk, run, or wheel your way to the finish line in the stunning Windsor Great Park.
17th July (8pm) - Parent to Parent Group 40+ yrs. This is a new parent-to-parent group specifically for families with adults aged 40 and over who have Prader-Willi Syndrome. These relaxed, informal sessions are led by our dedicated volunteer who understands the journey firsthand.
The aim is to create a supportive space where parents can come together to chat, share experiences, and explore topics that matter most to them. Each session will have a focus topic, guided by the volunteers, with future topics shaped by the group’s interests and needs.
Sessions will run via Zoom at 8 PM and last for around an hour. There’s absolutely no pressure to stay for the full time—you’re welcome to join for the whole hour, drop in and out, or just pop in for a few minutes.
Once you’ve registered, we’ll send you the Zoom link and all the details you’ll need.
August
2nd - PWS Community Day, Northern Ireland
Join us for a fun-filled family day at the Stormont Hotel, Belfast.
Get creative with a fun Arts & Crafts session, connect with other families and and enjoy free time in beautiful Stormont Park.
4th - PWS Community Fun Day at MOD Lyneham
Join us for a day of fun and PWS friendly activities including a special all-ability obstacle course!
September
7 - Fundraising Event: The Great North Run. Take part in the UK’s most iconic half marathon! We have just four spaces reserved for this event.
7 - Yorkshire and Humber Community Day.
Join us for a day of PWS-friendly activities and spending time with other families and people with PWS.
11 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
11 - Planning for the future Webinar: Vulnerable Beneficiaries
This friendly, informative online session will cover setting up wills, discretionary trusts, (which help protect your child’s financial future without affecting care arrangements), Lasting Power of Attorney and Deputyships.
19-22 - PWS Community Weekend at Camber Sands East Sussex. Please note that you will need to book and pay for your accommodation separately through the resort.
20- PWS Community Day - Rye Nature Reserve, Camber Sands
Join us for a day of PWS friendly activities and meet up with other families and people with PWS!
This community day is part of our Camber Sands community weekend, for anyone who'd prefer to just come along for the day.
27 - Fundraising Event: Abseil Down the National Express Lift Tower. Registration for this thrilling event will close soon, so don’t miss your chance to take part.
October
2 - P2P 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
December
4 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.
2026 Community Weekends
We’ll be updating the website with more details soon, but in the meantime, we wanted to give you plenty of notice about the dates and locations for our 2026 Community Weekends.
15 - 18 May: Skegness Weekend
12 - 15 June: Sundrum Weekend
18 - 21 September: Sandy Balls Weekend
Please fill in the form below if you would like to attend an event
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We'll get back to you to confirm your place and send you all the details you need to attend.
Planning your own fundraising event for PWSA?
Contact our fundraising manager Karen (kwilkinson@pwsa.co.uk/ 01332 365676) to discuss how we can support you.
If the event you’re looking for isn’t listed here it may not be confirmed yet.
Join us as a member (it's free!) to receive updates about events as soon as they become available.
