August
2nd - PWS Community Day, Hastings
Join us for a PWSA UK Get Together on Sunday August 2nd at Alexandra Park in Hastings!
Catch up with friends and make new ones at a relaxed PWS meet up, filled with good vibes and great company.
Join in with our Community Day packed with crafts, activities and of course if you want to have a walk round the beautiful park. There is no planned route and it will not be marshalled. Bring a picnic and a blanket and enjoy!
We have a football, hand massage, hoola hoops and lots of crafts.
September
18th - 21st - Sandy Balls Weekend. Join the PWSA Support Team for our Community Weekend in the South, a welcoming and relaxed opportunity for families to connect, share experiences, and enjoy time together with others who understand life with PWS. The weekend will include a range of gentle and enjoyable activities such as crafts, walks, social time over coffee, a Saturday community day out, and a Sunday afternoon gathering, with the freedom to take part in whatever feels right for you. A full welcome programme with all the details and a visual timetable will be shared ten weeks in advance to help you prepare, and we look forward to spending this special time together.
19th - Community Day, Blashford Lakes, Hampshire.
Join Patsy and Sheila for a relaxed community picnic at Blashford Lakes Reserve, a beautiful free nature reserve with lakeside walks, bird hides, picnic areas and a children's play space. Drop in anytime between 12pm and 4pm - if you're attending the Sandy Balls weekend, there's no need to register for this community day. Everyone with PWS must be accompanied by a parent or carer.
22nd- NI Connect Online. Our Northern Ireland Online Connect events provide an opportunity for parents / carers of children and adults living with PWS in Northern Ireland to come together to connect, chat, share experiences and learn from one another.
Sessions are friendly, informal and relaxed.
We look forward to welcoming both new and current families.
24th - Bingo Night. Join Ruth for a fun-filled Bingo Night on Zoom! These enjoyable online sessions are open to people with PWS aged 16 and over.
Please register by 12:00 pm on 21 September to take part in the event.
October
7th - Online Parents Get Together: Scotland. Sandra, our Specialist Advisor for Scotland will be holding an informal evening session for Scottish Families affected by PWS.
19th - Vulnerable Beneficiary Webinar: England and Wales. Join us for an insightful webinar discussing how to support vulnerable beneficiaries in England and Wales.
November
28th - Belfast PWS Christmas Get Together. Join us at Stormont Hotel, Belfast for our PWS Christmas Get Together.
December
13th - PWS Community Christmas Get together, North West. Join us for the North West Christmas Get Together in Wigan, with fun, games and a visit from Santa! We are looking forward to seeing you and making some truly magical memories.
13th - PWS Christmas Community Get Together, Gloucestershire. Get ready to celebrate with friends old and new at the PWSA Christmas Party. There's a mini disco with fun games, balloon modeling and maybe some magic! We'll have crafts and activities as well.
13th - PWS Community Christmas Panto Trip, South West. We’re delighted to invite families from our PWS community to a very special festive treat this December at the Exeter Corn Exchange – a joyful performance of the classic pantomime Pinocchio! Tickets are completely free for families (up to 4 people) in our PWS community.
Please fill in the form below if you would like to attend an event
Event sign up / info request
Thank you for registering your interest for an event.
We will get back to you as soon as possible.
Please try again later.
We'll get back to you to confirm your place and send you all the details you need to attend.
Fundraising Events
Take a look at the fundraising events we have planned for 2026.
These events are organised by PWSA UK to raise vital funds to support our work and bring our community together. Whether you’re interested in joining a challenge, taking part in a fun run, or attending a local gathering, there’s something for everyone. By taking part, you’ll be helping to make a real difference.
London Marathon - 26th April
Spaces in the 2026 London Marathon are now filled. If you’re interested in taking part in 2027, please get in touch with us.
Great North Run - 13th September
Spaces in the 2026 Freat North Run are now filled. If you’re interested in taking part in 2027, please get in touch with us.
Planning your own fundraising event?
Let us know! admin@pwsa.co.uk
If the event you’re looking for isn’t listed here it may not be confirmed yet.
Join us as a member (it's free!) to receive updates about events as soon as they become available.

