August
2nd August: PWS Community Day, Hastings
Join us for a PWSA UK Get Together on Sunday August 2nd at Alexandra Park in Hastings!
Catch up with friends and make new ones at a relaxed PWS meet up, filled with good vibes and great company.
Join in with our Community Day packed with crafts, activities and of course if you want to have a walk round the beautiful park. There is no planned route and it will not be marshalled. Bring a picnic and a blanket and enjoy!
We have a football, hand massage, hoola hoops and lots of crafts.
September
18th - 21th - Sandy Balls Weekend. Join the PWSA Support Team for our Community Weekend in the South, a welcoming and relaxed opportunity for families to connect, share experiences, and enjoy time together with others who understand life with PWS. The weekend will include a range of gentle and enjoyable activities such as crafts, walks, social time over coffee, a Saturday community day out, and a Sunday afternoon gathering, with the freedom to take part in whatever feels right for you. A full welcome programme with all the details and a visual timetable will be shared ten weeks in advance to help you prepare, and we look forward to spending this special time together.
October
7th - Online Parents Get Together: Scotland. Sandra, our Specialist Advisor for Scotland will be holding an informal evening session for Scottish Families affected by PWS.
19th - Vulnerable Beneficiary Webinar: England and Wales. Join us for an insightful webinar discussing how to support vulnerable beneficiaries in England and Wales.
December
13th - North West Christmas Get Together. Join us for the North West Christmas Get Together – good vibes, festive fun, and great company!
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Fundraising Events
Take a look at the fundraising events we have planned for 2026.
These events are organised by PWSA UK to raise vital funds to support our work and bring our community together. Whether you’re interested in joining a challenge, taking part in a fun run, or attending a local gathering, there’s something for everyone. By taking part, you’ll be helping to make a real difference.
London Marathon - 26th April
Spaces in the 2026 London Marathon are now filled. If you’re interested in taking part in 2027, please get in touch with us.
Great North Run - 13th September
We have 5 spaces in the iconic Great North Run. You can apply to run in the Great North Run here.
Planning your own fundraising event?
Let us know! admin@pwsa.co.uk
If the event you’re looking for isn’t listed here it may not be confirmed yet.
Join us as a member (it's free!) to receive updates about events as soon as they become available.
