Link to 'I have a family member with PWS' page
    Link to 'I'm a professional caring for someone with PWS' page
    Link to 'I have PWS' page
    29 July 2026
    You may have seen the recent ITV report where a whistle-blower working in a Local Authority as a SEN caseworker revealed how senior managers were deliberately delaying access for families for Special Educational Needs and Disabilities (SEND) services.
    7 July 2026
    Our last fundraising blog finished at the end of April and featured Sarah and her amazing friends and family, who took part in the Kiltwalk for her son Ryan. If you missed it, you can read all about Sarah and our other incredible fundraisers from the start of the year here.
    1 July 2026
    How we are working to influence standards and expand access to high quality PWS care in the UK
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