GDPR and membership form

What is GDPR?


The General Data Protection Regulations (GDPR) require us to ensure that any information that we have about you is held correctly so that we can continue being in contact with you. We don’t pass any of your details on to anybody else and we only use personal details to improve our support services. It also means if you call us again, we will have your details to hand.


Please complete a form for each member of the household by ticking the relevant consent boxes. You will receive an email confirming your submission.


Become a member


This form also gives you the option to become a member of PWSA UK - it's free, and all you have to do is tick the membership box in the form below, but you will only become a member if you select 'yes'. You can find out more about membership below.

GDPR form

If this form is being completed for a person with PWS, please provide their date of birth. This helps us with monitoring the age ranges of the individuals with PWS and better understand the support they require.

The following questions on gender and ethnicity are optional, but answering them will help ensure that we can reach all members of our PWS community across the UK.

Ethnicity (please choose from the dropdown menus):

So that we are compliant with Data Protection laws we need you to select if you wish us to have your details on our data base and if we can contact you? Please select below:


1) Permission to Contact*

Opt In
Opt in- Parental consent for Under 16’s
Opt out - Please remove me from the Database

 2) Information to be Sent  

Are you happy for us to send information about any of the following (if you DON'T want any information to be sent then please select the last option): 

The amount of mailings you will receive will be similar to what you are already getting, it is just so we can send you items you are interested in.

3) Contact Method

Are you happy for us to contact you via:

Email
Post
Telephone

Membership

Would you like to become a free member?

About membership


As a member of PWSA UK, you will join a special community at the heart of everything we do. Use your lived experience of Prader-Willi syndrome to influence our work and develop our plans.


Who can join?

Our membership scheme is open to anyone 16 years old or over who shares our mission, vision, and values. Our members include people with PWS, parents and carers, and professionals working with the PWS community.


Become a member today!

It's free to join, there is no set time commitment, and your membership does not expire.


About your membership

As a member of PWSA UK, you will have the opportunity to:

  • Join a thriving community
  • Attend our community events
  • Network with people with PWS, their families and others from the PWS community
  • Get direct access to our online community, a vibrant forum of like-minded people who share experiences and advice
  • Stay up to date with our online members newsletter bringing you all the latest PWSA UK and PWS news and updates
  • Attend our Annual General Meeting
  • Elect our board of trustees
  • Contribute to our mission
  • Join an organisation supporting the PWS community for over 40 years
  • Use your lived experience of PWS to influence our strategy and work

 

Join us and let’s help overcome the challenges of PWS together!


Simply tick the box at the end of the form on your left to become a member!

 

PWSA UK relies on charitable donations to continue with its vital work. You can make a donation here.


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