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    PWSA UK     |  We are only a phone call away
    Helpline 01332 365676

    PWSA UK    |    We are only a phone call away    |    Helpline 01332 365676

    Welcome to PWSA UK

    We offer a wide range of information and support to help families and professionals manage the
    complexities of Prader-Willi syndrome

    PWS Weekly Round Up

    Subscribe to our free weekly e-newsletter and receive all the latest PWSA UK and PWS news directly to your inbox

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    Latest News

    A new PWS Specialist Adviser for Scotland

    11 March 2026
    Sandra Thoms has joined our team to provide support and advice for Prader-Willi syndrome in Scotland
    children's hands holding colouring pencils and coloured paper

    Every child achieving and thriving?

    by Lizzie Pratt • 9 March 2026
    What will the SEND reforms mean for children and young people with Prader-Willi syndrome?

    Aardvark HERO Trial Pause: Community Conversation

    3 March 2026
    Join a community discussion to hear more about the recent pause in Aardvark's HERO trial

    Information for A&E

    Download this information to take with you in the event you need to take your son or daughter to hospital, or if they are having an operation.
    Download PDF

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