Welcome to PWSA UK
We offer a wide range of information and support to help families and professionals manage the
complexities of Prader-Willi syndrome
complexities of Prader-Willi syndrome
PWS Weekly Round Up
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Latest News
Our last fundraising blog finished at the end of April and featured Sarah and her amazing friends and family, who took part in the Kiltwalk for her son Ryan. If you missed it, you can read all about Sarah and our other incredible fundraisers from the start of the year here.
How we are working to influence standards and expand access to high quality PWS care in the UK
People with Prader-Willi syndrome are particularly vulnerable during periods of intense heat
Sarah Brindle, PWSA UK's mental capacity lead explains the implications of the DoLs ruling for PWS
Information for A&E
Download this information to take with you in the event you need to take your son or daughter to hospital, or if they are having an operation.
Want to get involved?
If you want to support us either by volunteering or fundraising contact admin@pwsa.co.uk
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