Read all the latest news and developments from the world of PWS in our newsletter:

1 May 2026
A round up of everything going on this May
1 May 2026
We had a wonderful day at our second conference for adults with PWS!
27 March 2026
Our first set of graduates have successfully completed the BOSS course!
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Get the latest PWS news and updates:


Our email updates make sure you're the first to know about everything going on in the world of PWS, including:


  • Developments in PWS research
  • Information about PWS and health, education and social care
  • Community events, meet ups and activities
  • Opportunities to get involved in research trials
  • News from the PWS community and about PWSA UK

We provide dedicated news and updates for families with younger children, parents of adults with PWS, professionals and a special magazine for adults with PWS, 'Wise Owl Feathers.'