Read all the latest news and developments from the world of PWS in our newsletter:

7 July 2026
Our last fundraising blog finished at the end of April and featured Sarah and her amazing friends and family, who took part in the Kiltwalk for her son Ryan. If you missed it, you can read all about Sarah and our other incredible fundraisers from the start of the year here.
1 July 2026
How we are working to influence standards and expand access to high quality PWS care in the UK
24 June 2026
People with Prader-Willi syndrome are particularly vulnerable during periods of intense heat
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Our email updates make sure you're the first to know about everything going on in the world of PWS, including:


  • Developments in PWS research
  • Information about PWS and health, education and social care
  • Community events, meet ups and activities
  • Opportunities to get involved in research trials
  • News from the PWS community and about PWSA UK

We provide dedicated news and updates for families with younger children, parents of adults with PWS, professionals and a special magazine for adults with PWS, 'Wise Owl Feathers.'