Read all the latest news and developments from the world of PWS in our newsletter:
Please help us show how Prader-Willi syndrome affects people's lives in the UK
Researcher, Gina Skourti has been talking to families who have lost someone with Prader-Willi syndrome to see what lessons can be learned from their experiences. Gina and our trustee, Dr Anne Livesey, recently presented their findings at the Learning Together Conference.
You may have seen the recent ITV report where a whistle-blower working in a Local Authority as a SEN caseworker revealed how senior managers were deliberately delaying access for families for Special Educational Needs and Disabilities (SEND) services.
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We provide dedicated news and updates for families with younger children, parents of adults with PWS, professionals and a special magazine for adults with PWS, 'Wise Owl Feathers.'
