PWSA UK's 40th anniversary: what's YOUR big idea?

JHorsfall • Jan 28, 2022

We turn 40 this year - and we'd love to hear YOUR ideas for events and activities!

This year marks PWSA UK’s 40th anniversary and we will be inviting our amazing PWS community to celebrate with us with events and activities planned throughout the year - and we'd like YOUR input too!


We will formally launch our celebrations in March, with activities then running through to our National Conference in the autumn. 


We will be announcing further details nearer the time, via our social media channels, our Instant News e-newsletter and in the next edition of PWS News in the spring, but for now we would like to hear YOUR ideas about what we should be doing to mark this marvellous milestone.


What events or activities would you like to see happen during 2022?


Please email Karen or Susan at admin@pwsa.co.uk with your BIG IDEAS and we will help make them happen! 


We would also like to hear your memories of how life with PWS has changed over the last 40 years and how PWSA UK has helped you in that time. This could take the form of written recollections, old photos or even old PWSA UK leaflets or materials that you might have at home. Whatever it is, we’d love to hear from you! 


We would like to be able to share your memories with our wider community throughout the year, including in our magazine and across our social media channels, so please contact Jonathan at jhorsfall@pwsa.co.uk with anything you’d like to share. 


by JHorsfall 14 Feb, 2024
Changes to our membership offer - and to the way we share our news!
by JHorsfall 26 Jan, 2024
Details of three PWS community days announced in Ayr, Skegness and Dorset!
by JHorsfall 02 Nov, 2023
T ARGET NOW REACHED - THANK YOU! You can still support our work by making a donation here .
by JHorsfall 14 Jun, 2023
Can you help with this important piece of PWS research?
by JHorsfall 02 Jun, 2023
The taster sessions will be FREE and we encourage parents, grandparents and children to join in!
by JHorsfall 26 May, 2023
PWSA UK and FPWR UK are kicking off a new collaboration by going orange together!
by JHorsfall 19 May, 2023
Our one-day conference for adults with PWS returns for 2023!
by JHorsfall 19 May, 2023
Three new videos for Awareness Month from Pilates instructor Joakim Valsinger!
by JHorsfall 28 Apr, 2023
Help us raise funds and awareness of Prader-Willi syndrome
by JHorsfall 03 Apr, 2023
Easter can be a particularly challenging time for families in our PWS community. However, there are ways to celebrate without the need to focus on chocolate.
Show More

Share an article

Share by: