18 - 25 Years
With adulthood comes further challenges, particularly around increasing independence and the lack of understanding about the very special needs of those with PWS on the part of some who work with them. Usually, instead of being under the care of a particular health professional such as a paediatrician as they were when children, adults will be seen by different specialisms for their health care. The following links will help all concerned to understand more about PWS and its management for adults.
The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PWSA UK.
If you would like to talk to someone about any aspect of the information available below then our support team can be reached on 01332 365676, or email supportteam@pwsa.co.uk.
Dietary Management
Download PDFBehaviour Management
Download PDFHealth Care
Download PDFSpeech and Language
Download PDFEducation, Work and Training
Download PDFResidential Care and Supported Living
Download PDFSocial Life and Relationships
Download PDFInformation for College Staff
Download PDFInformation for GPs
Download PDFInformation for Hospital and A&E Staff
Download PDF
CONTACT
Postal correspondence address:
Prader-Willi Syndrome Association UK
C/O Metcalf’s Commercial Decorators
3 Deer Park Road
Moulton Park
Northampton
NN3 6RX
Phone: +44 (0)1332 365676
Email: admin@pwsa.co.uk
Registered Charity No. 1155846
