Health

From birth through to adulthood, there can be a number of health professionals involved in the lives of those PWS and this can, at times, feel overwhelming.

Below is information to help you navigate the many different areas that health, including some that can be passed to professionals involved in your son or daughter’s care or treatment.

PWS specialist clinics

There are a number of NHS-run PWS specialist clinics across the UK, and your GP can refer  your son or daughter to them. For further information, please click here.

Dates for specialist clinics

Details of when members of our support team will be visiting specialist PWS clinics will appear here when confirmed.

• Vision and care of the eyes (PDF)

• Speech and language (PDF)

The use of growth hormone treatment (GHT) for children with PWS was approved in Europe in 2001. There have now been many research trials, mostly done on a small scale, which show clear benefits for children with PWS, including increased height, improved muscle strength and improved respiratory functions. It is not currently licensed in the UK for adults with PWS, although a few individuals may receive it.

PWSA UK - Growth hormone treatment for children with PWS (PDF)

• Information for hospital staff (PDF)
  
• Anaesthesia Recommendations in PWS - Orthanet (PDF)
• NHS Choices – Prader Willi Syndrome (Link)
• PWS Medical Alert in several languages –International PWS Organisation (Link)