Meeting Up With Others
Our OWL (Our Way of Life) Focus Group of adults with PWS meets through the year. The group ensures that your voices are heard by PWSA UK and that we are providing the support you need.
We also know how much you all enjoy getting together and having fun, especially as you all live in different parts of the country!
We have a monthly Zoom meetings for adults with PWS. They are great fun. Sometimes we do bingo and sometimes we have a quiz night. If you want to get an invitation to join in, please email us.
Every year we have community events that you can come along to:
- In the summer, we have a day out for adults and children with PWS. You can come with a family member or a carer.
- We have just announced our next Face to Face conference.
- We have community weekends where you can join us from Friday to Monday with your family or carer.
- We have a Christmas or New Year get together too.
- Look out for all these events on the website or on Facebook.
Information on all the events and activities we organise for you will be announced here on this page.
To find out more, please contact Ruth on 01332 365676 or email rconsterdine@pwsa.co.uk.
Face to Face Conference for Adults with PWS.
The PWSA Owl Focus Group (OFG) would like to invite adults with Prader-Willi syndrome to a Face-to-Face Conference, with a parent or carer attending alongside them.
The programme will include:
- An engaging session on staying safe online
- A guided activity led by the OFG, giving attendees the opportunity to share their thoughts on health, dietary management and other important topics
- A fun afternoon workshop, with a quiet space available if preferred
- Time to meet, talk and socialise
