Financial help
Life with a family member with PWS can often mean additional expenses for the household, and any additional financial help that can be obtained can be useful. Although a diagnosis of PWS doesn’t automatically entitle families to financial support there are some allowances that can be applied for. A family's circumstances will be considered on a case by case basis, against the set criteria in each situation.
Sources of Financial Support
Applications can be long, take significant time and can be a challenge to complete. However, our leaflet, Government Allowances and Sources of Financial Help, contains guidance to help you, and we can provide advice and/or a letter to support your application, if required.
- Disability Living Allowance and other sources of funding and help (PDF)
- Personal Independence Payments (PIP) (PDF)
Government Initiatives
- Disability Living Allowance (DLA) – 3months to 15 years old – made up from 2 components, the ‘care component’ and the ‘mobility component’ and to get DLA you must be eligible for at least one component -
www.gov.uk/dla-disability-living-allowance-benefit
- Personal Independence Payment (PIP) – from 16 years onwards – potential help with costs if you have a long term ill-health or disability
UK and Wales: www.gov.uk/pip
Scotland: www.mygov.scot/adult-disability-payment
Northern Ireland:
www.nidirect.gov.uk/articles/personal-independence-payment-pip
- Carers allowance – potential payments if you care for someone at least 35 hours a week and they receive certain benefits -
www.gov.uk/carers-allowance
- Universal Credit (UC) – potential payments to help with living costs if you are on a low income or out of work -
www.gov.uk/universal-credit
- Council Tax reduction – potential reductions if you’re on a low income or claim benefits - www.gov.uk/apply-council-tax-reduction
Support to find and access grants
We have compiled a downloadable list of organisations that can help you access funding, as well as those who can also provide grants themselves, including to help with equipment, holidays, housing and days out.
