Financial help
Sources of Financial Support
Applications can take a long time and can be challenging to complete.
The leaflets below contain guidance to help you fill out applications with PWS in mind.
PWSA can also provide advice and/or a letter to support your application, if required.
- Disability Living Allowance and other sources of funding and help (PDF)
- Personal Independence Payments (PIP) (PDF)
- Disability Living Allowance (DLA) – 3months to 15 years old – made up from 2 components, the ‘care component’ and the ‘mobility component’ and to get DLA you must be eligible for at least one component -
www.gov.uk/dla-disability-living-allowance-benefit
- Personal Independence Payment (PIP) – from 16 years onwards – potential help with costs if you have a long term ill-health or disability
UK and Wales: www.gov.uk/pip
Scotland: www.mygov.scot/adult-disability-payment
Northern Ireland:
www.nidirect.gov.uk/articles/personal-independence-payment-pip
- Carers allowance – potential payments if you care for someone at least 35 hours a week and they receive certain benefits -
www.gov.uk/carers-allowance
- Universal Credit (UC) – potential payments to help with living costs if you are on a low income or out of work -
www.gov.uk/universal-credit
- Council Tax reduction – potential reductions if you’re on a low income or claim benefits - www.gov.uk/apply-council-tax-reduction
Support to find and access grants
We have compiled a downloadable list of organisations that can help you access funding, as well as those who can also provide grants themselves, including to help with equipment, holidays, housing and days out.
Managing money for adults with PWS
Adults with PWS will usually need extra support to manage finances and benefits. This is especially important because of the impact that hyperphagia has on someone's ability to make good decisions about money and spending money on food.
The Down's Syndrome Association has some useful information about bank accounts and managing money for parents of adults with special needs.


