I have a family member with PWS
Information
Please click on the images below to find the information you need on each topic.
Tools and resources
This is a wallet sized card which can be used to quickly inform medical staff, particularly in emergencies, that there are PWS specific health issues and risks which they need to be aware of. Download it here.
Download information for GPs and
information for hospital staff to take with you in the event of a medical emergency or unexpected appointment.
This is a booklet where adults with PWS can write down details of their routine, what makes them unique and what they feel is important for people to know about them. This can then be given to people such as college staff, carers and extended family members. You may want to help them fill it out. Download it here.
Support and community
Parent to Parent Groups 2023
Our Parent to Parent groups (P2P) are support groups run by parents for parents. These take place online and are a place to share experiences, discuss different topics and speak to other parents. It would be lovely to have you join us, and if you would like to be added to the invitation list or find out more, please use the contact details below:
P2P for parents of children aged 0-3 years – takes place quarterly
Contact Sheila at sinwards@pwsa.co.uk
P2P for parents of children aged 4-8 years – takes place quarterly
Contact Sheila at sinwards@pwsa.co.uk
P2P for parents of children aged 8-15 years – takes place quarterly
Contact Sarah at sbrindle@pwsa.co.uk
P2P for parents of adults – takes place quarterly
Contact Ruth at rconsterdine@pwsa.co.uk
P2P for dads of children and adults with PWS – every other month
Contact Sheila at sinwards@pwsa.co.uk
Postal correspondence address:
Prader-Willi Syndrome Association UK
C/O Metcalf’s Commercial Decorators
3 Deer Park Road
Moulton Park
Northampton
NN3 6RX
Phone: +44 (0)1332 365676
Email: admin@pwsa.co.uk
Registered Charity No. 1155846
All Rights Reserved | PWSA UK