Birth - 2 Years
When a child with Prader-Willi syndrome (PWS) is born, it can be a very difficult time for families as they come to terms with the diagnosis and all its implications. Babies and young children are usually seen by a variety of professional specialists including paediatricians, endocrinologists, speech therapists and dietitians. The following links will help all concerned to understand more about PWS and its management and how to help the child reach his or her full potential.
You are not alone
The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PWSA UK.
If you would like to talk to someone about any aspect of the information available below then our support team can be reached on 01332 365676, or email supportteam@pwsa.co.uk.
Coming to Terms with the New Diagnosis
Download PDFFeeding and Weaning Your Child
Download PDFGrowth Hormone for Children with PWS
Download PDFHealth Care
Download PDFSpeech and Language
Download PDFVision and Care of the Eyes
Download PDFDeveloping Your Child's Potential
Download PDFDental Care
Download PDFInformation for GPs
Download PDFInformation for Hospital and A&E Staff
Download PDF
CONTACT
Postal correspondence address:
Prader-Willi Syndrome Association UK
C/O Metcalf’s Commercial Decorators
3 Deer Park Road
Moulton Park
Northampton
NN3 6RX
Phone: +44 (0)1332 365676
Email: admin@pwsa.co.uk
Registered Charity No. 1155846
