Transition to adulthood

There are a number of changes that you may need to deal with once a person with PWS becomes an adult. They may be leaving school, transferring from child health services to adult health services and possibly wanting more independence. Many adults often leave home to live in residential care or supported living. This page includes information on your options in this respect.

Residential options



We maintain a PWS provider list of all the residential care and supported living services we know of that support people with PWS.


We have also recently produced a PWS provider charter which sets out the minimum standards of care that people with PWS should receive. We are asking all PWS providers to sign this and commit to providing this care.


The PWS provider list denotes which care providers have signed the charter and which have yet to do so.


If you are a residential care or supported living provider, you can find information specific to your requirements here.


Continuing Healthcare (CHC)


Continuing Healthcare (CHC) is NHS funding for people whose main needs are related to their health. Social care funding (paid for by local authorities) covers support such as personal care and day-to-day needs and is usually means-tested. 


People with Prader-Willi syndrome (PWS) often have both health and social care needs, which can lead to disagreement about who should fund their care. Following an assessment, CHC may fund all care or contribute alongside social care funding.


This guide explains the CHC assessment process and highlights what should be considered for people with PWS. Our team can also support you through the assessment and application process.


Parent friendly guide to NHS Continuing Health Care (CHC)


Further infromation

For information aimed at adults with PWS regarding relationships, looking after themselves, and the changes they may experience growing up, please see our Growing Up animations.


For information written specifically for adults with PWS, please go to our I Have PWS page.


For information on other topics such as health, behaviour, education and diet, please visit our I have a family member with PWS section.