25 - 40 Years
As the person with PWS grows older, their parents may no longer be able to care for them. This is often when supported living or residential care is considered. Whatever form of living away from home is decided upon, it must always be tailored to the needs of the person with PWS, with trained and knowledgeable care staff. This is also a time when increasing weight, where it has not been well-controlled, can become a serious health issue. The following links will help all concerned to understand more about PWS and its management for adults.
The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PWSA UK.
If you would like to talk to someone about any aspect of the information available below then our support team can be reached on 01332 365676, or email
supportteam@pwsa.co.uk.
Dietary Management
Download PDFBehaviour Management
Download PDFHealth Care
Download PDFDeveloping Skills, Work and Training
Download PDFResidential Care and Supported Living
Download PDFSocial Life and Relationships
Download PDFInformation for GPs
Download PDFInformation for Hospital and A&E Staff
Download PDF
CONTACT
Postal correspondence address:
Prader-Willi Syndrome Association UK
C/O Metcalf’s Commercial Decorators
3 Deer Park Road
Moulton Park
Northampton
NN3 6RX
Phone: +44 (0)1332 365676
Email: admin@pwsa.co.uk
Registered Charity No. 1155846
