Since our last fundraising blog, supporters have been raising money and awareness for PWSA UK through cycling, skydiving, running, walking and even a gaming marathon.
Here are some of their stories, with our thanks to everyone who has taken part or supported them.
Nathan’s Everesting Challenge
Nathan completed the Everesting Challenge, cycling up the same hill repeatedly to climb the equivalent height of Mount Everest.
His challenge in numbers:
- 8,848 metres of elevation
- 78 climbs of Aston Hill
- 255 miles cycled
- 19 hours and 48 minutes in the saddle!
Read Nathan’s account of the challenge on
Facebook.
Thank you, Nathan, for your determination and for choosing to support PWSA UK through such a demanding challenge.
A 24-hour Gaming Marathon
Andy and friends held a
24-hour gaming marathon at Pixel Busters, who kindly provided the space.
Andy also spoke to local radio about the fundraiser. You can hear his interview on BBC Sounds:
He has also been selling items on eBay to raise further funds.
Thank you to Andy, Pixel Busters and everyone who supported the gaming marathon.
After his newborn nephew was diagnosed with Prader-Willi syndrome, Craig decided to raise funds for PWSA UK.
Joined by Colin and four dogs, he walked the West Highland Way over eight days.
Craig has raised £1,452 so far.
Thank you, Craig and Colin, for supporting other people with PWS and their families - with help from your four-legged companions.
Six runners represented PWSA UK at this year’s Great North Run, raising funds and awareness.
The team included Sean, a grandparent; Tracey, formerly PWSA UK’s Specialist Adviser for Northern Ireland; Daniel, a brother; Claire, a mum; Sian, a family friend; and Danny, Chair of Trustees for PWSA UK.
Together, they raised £6,181.
Thank you to all six runners and everyone who donated or cheered them on.
If you would like to take part next year, please get in touch.
The Manchester Half Marathon
Jodie, Cerys and George completed the Manchester Half Marathon for PWSA UK.
Together, they raised £1,621.
Thank you to all three runners for their hard work and support.
George, a family friend, has also qualified for next year’s Manchester Marathon. We look forward to hearing how he gets on.
Ruth, mum to Chester, and their family friends are continuing to fundraise in other ways. Ruth is organising a ball on
15th May 2027, with more details to follow.
Chester’s sister, Lola, also raised funds during PWS Awareness Month by designing and selling handmade awareness pin badges. We are grateful to the family and their friends for their continued support.
Lauralee Takes on the Cologne Marathon
Lauralee ran the Cologne Marathon in memory of her late sister, Laetitia.
As well as preparing for the marathon, Lauralee overcame her apprehension about asking for donations. She raised £1,579 and finished in 4:38.
Thank you, Lauralee, for your determination and for supporting PWSA UK in Laetitia’s memory.
Thank You for Your Support
Whether you are a parent, grandparent, sibling, family friend or simply want to help, your fundraising supports our work with people with Prader-Willi syndrome and their families. It also raises awareness and helps more people understand PWS.
You do not need to take on a physical challenge to get involved. Selling handmade items, organising an event or raising awareness locally can all make a difference.
There are still fundraisers under way before the end of the year, and we look forward to sharing their stories.
Thinking about a fundraising challenge for 2027?
If you are thinking about fundraising in 2027, please get in touch. Whether you have an idea or would like some suggestions, the PWSA UK team can help you plan and get started.
Thank you to everyone who has fundraised, donated, shared a fundraising page, raised awareness or cheered our supporters on. We appreciate everything you do for PWSA UK.
