PWS Resources

Explore our range of free booklets, available to download or order. We kindly ask that you only order what you need, helping us ensure these resources remain available to everyone.

If you’re able, you can support us in continuing to provide these resources free of charge by making a donation.

Practical Portions

Practical Portions for PWS is a new free resource specially created by expert PWS dieticians and nutritionists. It's designed to make it easy to work out appropriate portions for people with PWS to ensure their nutritional needs are met while maintaining a healthy weight.

Click the image below to read Practical Portions online, or to download.

Alternatively, to order physical copies, please complete the form below. Each pack contains 5 copies of Practical Portions so you can give copies to other family members and carers. You can only order one pack at a time, and you cannot order less than one pack.

If you are a professional or wish to order more than one pack of 5, please contact us.

Please note that Practical Portions is only available for UK shipping.

Order Practical Portions

Order a pack of 5 Practical Portions for Prader-Willi Synrome.

Practical Portions for Prader-Willi Syndrome

See Me, Not Just Prader-Willi Syndrome

See Me, Not Just Prader-Willi Syndrome: An Everyday Guide for People Supporting Individuals with PWS is a booklet co-created with adults who have Prader-Willi Syndrome through our Owl Focus Group.

The Owl Focus Group is made up of 13 adults with PWS who meet with us regularly to ensure the voices and lived experiences of people with PWS are heard and reflected in our work.

This booklet is designed to be shared by people with PWS with their carers, supporters, or service providers to help them better understand their individual needs. Throughout the booklet, you will learn practical ways to provide support, with space to personalise it together based on individual needs.

Click the image below to read See Me, Not Just Prader-Willi Syndrome online, or to download.

Alternatively, to order a physical copy, please complete the form below.

Please note that See Me, Not Just Prader-Willi Syndrome is only available for UK shipping.

Order See Me, Not Just Prader-Willi Syndrome

Order one See Me, Not Just Prader-Willi Syndrome book. 

See me, Not Just Prader-Willi Syndrome