Thank you to our fundraisers

A Fantastic Start to the Year for Fundraising 

25th February – Quiz Night in Hastings 

4th April – Pen y Fan Challenge 

Rose Felloni (our John Booth Award winner 2025) continues her year of fundraising in celebration of her 80th birthday, planning one event each month. 

In April, Rose and her family took on an unforgettable challenge: climbing Pen y Fan while transporting a fridge filled with cans of beer! 

Rose shared her experience with humour and honesty: 

“Yes, we’ve all recovered! The harness holding the fridge broke, so plan B was to drag it up the mountain. Just before the top one wheel fell off, and the other came off during the descent. Luckily, two other climbers helped Phil get it down. It went up full of beer and came back still full! Storm David tried its best to blow us off the mountain. I gave up about a quarter of the way up due to my hip and arthritis, and Chris and his party even broke down on the way and had to be towed home. Sarah couldn’t wear her Spitfire costume due to the wind, so was well wrapped up at the summit. My great-granddaughters (aged 10 and 14) made it to the top but got soaked through – we even had to find a launderette afterwards! Now rested and ready for the next adventure.” 

We are so pleased to hear everyone made it safely up and down. Thank you, Rose, for yet another truly memorable and determined fundraising challenge – we can’t wait to see what you do next! 

1st April – Wing Walk for a 60th Birthday 

John Sandford, father to Clare, marked his 60th birthday with an incredible wing walk fundraiser – an unforgettable (and slightly nerve-wracking!) experience. 

John, no stranger to adventurous challenges, took it all in his stride and raised funds for both PWSA UK and Carrickfergus Urban Farm, where Clare has worked since leaving school. 

John raised an amazing £1,200. Thank you, John – we hope you had a brilliant birthday and a safe landing! 

4th April – Boro Rangers vs Marske 

Boro Rangers Football Club once again supported PWSA UK as their match day charity, continuing their wonderful commitment to the cause. 

Josh, whose son Henry has PWS, shared: 

“This is the second year running that Boro Rangers have chosen PWSA UK as match day sponsor. We are extremely grateful to the Chairman, management team, players, staff and everyone involved for their continued support.” 

A fantastic partnership – thank you to everyone at Boro Rangers. 

19th April – Manchester Marathon 

We were delighted to see four fantastic fundraisers take part in the Manchester Marathon: 

• Anthony – running for a close friend with a family connection to PWS 
• Matt and Dan – brothers to someone with PWS 
• Christina – a support worker for an adult with PWS 

Matt before taking on the challenge 'This April, Dan and I are taking on the Manchester Marathon to raise money for the Prader-Willi Syndrome Association UK - a charity that’s close to our hearts. Our sister, Megan, lives with Prader-Willi Syndrome, a rare and complex genetic condition. We’re running to give back and help PWSA UK continue their vital work - offering support to families like ours, raising awareness, and funding important research.'

An incredible achievement from all runners – thank you for your dedication and support.

26th April – London Marathon 

The London Marathon continues to be a vital fundraising event for PWSA UK, and this year we were proud to have seven incredible runners take part. 

Three secured places via the public ballot, and four ran with PWSA UK Golden Bond places: 

• Alan – ran for his daughter 
• Tom – ran for his niece 
• Kyle – ran for his sibling 
• Kai – ran for a family member 
• Charles – ran for his uncle 
• Ian – ran for his daughter 

It was a truly special day, with multiple world records broken and an amazing atmosphere throughout. It was wonderful to see so many people running in support of PWS and the families affected. 

Apply for the 2027 London Marathon here: https://forms.gle/33kd1TD8xYxj35Gw6

26th April – Kiltwalk: Team Ryan 

Ryan’s Kiltwalk is a very special annual event organised by Sarah, Ryan’s mum. Ryan sadly passed away at just 13, and this year marked the second Big Stroll completed by Sarah, her family and friends in his memory. 

Sarah shared: 

“I am so grateful to everyone who has taken part and donated. Team Ryan continues to make me proud. I know Ryan will be looking over us all and be so proud of our continued fight for help for his fellow PWS family.

We’ve also had agreements from camhs and NHS Glasgow to make changes to the way children with PWS are treated and have promised to see this condition as an eating disorder, which in my opinion is the worst one there is. They’ve agreed to change the referral process for children and young adults with PWS too. I will continue to fight for the rights of every single person with PWS. Ryan didn’t receive the help he so desperately needed and deserved, but knowing he will continue to save lives after his death, what a legacy to leave behind” 

Thank you Sarah.

Ryan’s legacy continues to inspire meaningful change and support for others. 

Thank you!

We are incredibly grateful to all our fundraisers who continue to make such a difference to the work we do. Your energy, kindness and commitment help us support individuals and families affected by PWS every day. 

If you would like to take part in a fundraising event, please contact: admin@pwsa.co.uk