Aardvark HERO Trial Pause: Community Conversation

Join a community discussion  to hear more about the recent pause in Aardvark's HERO trial

Last week Aardvark Therapeutics announced that they have temporarily paused enrolment and dosing in the HERO trial.

This is disappointing news for our community, particularly those who have volunteered to participate in the study.

Aardvark has told us that everyone already involved in the trial will be contacted to discuss this -  if you haven’t, please reach out to your study site contact.


PWSA USA and FPWR will be hosting a community conversation with Aardvark on 3rd March to discuss the pause in the trial and what this means for participants.  Because this is primarily for those based in the US, unfortunately for those of us in the UK, this will be at 1am GMT on 4th March.

We appreciate this will mean many families are unable to take part, so we will provide an update about the content afterwards.


The goal of this meeting is is to create a space for open dialogue, shared understanding, and connection. Ensuring that families, caregivers, and individuals with PWS have access to accurate information and an opportunity to hear directly from Aardvark is important to all of us at this time.

 

Link to register: https://us02web.zoom.us/webinar/register/WN_pkArayuFTWy_IrIPIXAvPw

 

 


11 March 2026
Sandra Thoms has joined our team to provide support and advice for Prader-Willi syndrome in Scotland
children's hands holding colouring pencils and coloured paper
by Lizzie Pratt 9 March 2026
What will the SEND reforms mean for children and young people with Prader-Willi syndrome?

Share an article