A new PWS Specialist Adviser for Scotland

We recently welcomed a new face to our PWS Specialist Advice Team at PWSA UK, Sandra Thoms.

Sandra brings with her extensive experience supporting children, young people and adults with a wide range of complex needs in Scotland. One of our key objectives at PWSA UK is to ensure that people with PWS and their families have access to the support they need to live healthy and fulfilling lives, wherever they are in the UK.

Many aspects of the health and education system in Scotland are different from the rest of the UK, and Sandra's expertise means that she can help our Scottish PWS community navigate these systems to access the care and support they need. Sandra is based in Lanarkshire which also makes her perfectly placed to meet our Scottish community in person and attend clinics, meetings and events as needed.

Sandra says:

"The most valuable learning throughout my career has come from the individuals and families I’ve had the privilege to work alongside. Their lived experiences have shaped my understanding more than anything else. I am delighted to take on my role with PWSA UK and look forward to continuing to learn about PWS, and to working together with families and professionals to make a positive difference.

Outside of work, I have an adult daughter with a dual diagnosis of ASD and ADHD, who I love spending time with, pamper evenings are our favourite. I also enjoy walks on the beach whenever I can, learning new things, and spending time with good friends."

Sandra's got straight to work trying to bring about positive change for people with PWS north of the border. So far she's already been to the Scottish Parliament to raise awareness of PWS for Rare Disease Day and been out meeting families and professionals across Scotland.

You can contact Sandra using our support request form here.