New connections and sharing joy at our PWS Adult Conference
We had a wonderful day at our second conference for adults with PWS!
We had a wonderful day at our second conference for adults with PWS!
It was great to see so many familiar faces attending and to meet some new ones too.
The conference was produced and hosted by the Owl Focus Group, our steering group of adults with PWS.
They designed a brilliant program including a listening exercise, an online safety session and a music workshop. We also took some time to thank the members of the OFG who have finished their time in the group for their service and welcome some new members.
It’s always lovely to see how much joy it brings people with PWS to be able to spend time together and the care and understanding they show for each other never fails to amaze us.
A round up of everything going on this May
Our first set of graduates have successfully completed the BOSS course!
Sandra Thoms has joined our team to provide support and advice for Prader-Willi syndrome in Scotland
What will the SEND reforms mean for children and young people with Prader-Willi syndrome?
Join a community discussion to hear more about the recent pause in Aardvark's HERO trial
